Evidence map›Paper›PMID 40746401›Full record

ArticleClinical psychological science : a journal of the Association for Psychological Science2025

Engaging people with lived experience of psychological disorders: Current research and future directions for community-engaged measure development in psychological science.

Cassandra L Boness, Hanna Hebden, David T Lardier, Liliana Spurgeon, Ashli Timmons, Leonard J Simms, Kamilla L Venner, Katie Witkiewitz

Abstract read
In one paragraph

Article in Clinical psychological science : a journal of the Association for Psychological Science, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Development and validation of the Loss of Control-Alcohol (LOSS-A) scale: A mixed methods study with adult drinkers.Psychology of addictive behaviors : journal of the Society of Psychologists in Addictive Behaviors · 2026
    Article
  3. Article
  4. Measuring affective symptoms of depression in aphasia: development of an accessible ecological momentary assessment tool.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  5. Article
  6. Article
  7. Article
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  9. Article
  10. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Cassandra L BonessUniversity of New Mexico Center on Alcohol, Substance use, And Addictions.
Hanna HebdenUniversity of New Mexico Center on Alcohol, Substance use, And Addictions.
David T LardierUniversity of New Mexico Department of Psychiatry & Behavioral Sciences, Division of Community Behavioral Health.
Liliana SpurgeonUniversity of New Mexico, Collegiate Recovery Center.
Ashli TimmonsVirginia Commonwealth University.
Leonard J SimmsUniversity at Buffalo, Department of Psychology.
Kamilla L VennerUniversity of New Mexico Center on Alcohol, Substance use, And Addictions.
Katie WitkiewitzUniversity of New Mexico Center on Alcohol, Substance use, And Addictions.

Funding

Alcohol Research Training: Methods & MechanismsT32AA018108 · NIAAA · UNIVERSITY OF NEW MEXICO · PI Katie A Witkiewitz · 2010 to 2026
$5.6M
Measurement and Multimethod Validation of Alcohol Use Disorder Etiologic MechanismsK08AA030301 · NIAAA · UNIVERSITY OF NEW MEXICO · PI Cassandra Lee Boness · 2022 to 2026
$1.1M
NIAAA NIH HHS K08 AA030301NIAAA NIH HHS T32 AA018108
6 · The paper itself

Abstract

The ability to make valid conclusions in psychological science rests upon rigorous measure development. People with lived experience of psychological disorders can make invaluable contributions to the measure development process, but they are often excluded from this process by researchers. When people with lived experience are included, their contributions are limited to consultation early in the process. This review advocates for shared decision-making with people with lived experience throughout the measure development process. We provide an overview of the phases and steps involved in the development of self-report measures, highlighting the critical contributions of people with lived experience at each step. Next, guided by the continuum of community engagement in research, we review studies from the psychological science literature that embrace community-engaged measure development approaches inclusive of people with lived experience of psychological disorders. We conclude with a discussion of opportunities and challenges to community-engaged measure development in psychological science.

Indexed as

community-engaged researchlived experiencemeasure developmentmeasure validationtest construction

Identifiers

PMID40746401
PMCPMC12312666

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.