Evidence map›Paper›PMID 40743653›Full record

ArticleThe Journal of surgical research2025

A Qualitative Study Examining Caregivers' Perspectives on Healthcare System Barriers and Facilitators to Foregut Cancer Care.

Jaspinder Sanghera, Ioannis Liapis, Michelle Holland, Ivan Herbey, Katie West, Martin J Heslin, Larry Hearld, Krista Mehari, Smita Bhatia, Annabelle L Fonseca

Abstract read
In one paragraph

Article in The Journal of surgical research, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Jaspinder SangheraDepartment of Surgery, University of Alabama at Birmingham, Birmingham, Alabama; Institute for Cancer Outcomes and Survivorship, University of Alabama at Birmingham, Birmingham, Alabama.
Ioannis LiapisDepartment of Surgery, University of Alabama at Birmingham, Birmingham, Alabama; Institute for Cancer Outcomes and Survivorship, University of Alabama at Birmingham, Birmingham, Alabama.
Michelle HollandDepartment of Surgery, University of Alabama at Birmingham, Birmingham, Alabama; Institute for Cancer Outcomes and Survivorship, University of Alabama at Birmingham, Birmingham, Alabama.
Ivan HerbeyDepartment of Surgery, University of Alabama at Birmingham, Birmingham, Alabama.
Katie WestDepartment of Biosciences, Rice University, Houston, Texas.
Martin J HeslinDepartment of Surgery, University of Alabama at Birmingham, Birmingham, Alabama.
Larry HearldDepartment of Health Services Administration, University of Alabama at Birmingham, Birmingham, Alabama.
Krista MehariDepartment of Psychology, Vanderbilt University, Nashville, Tennessee.
Smita BhatiaInstitute for Cancer Outcomes and Survivorship, University of Alabama at Birmingham, Birmingham, Alabama.
Annabelle L FonsecaDepartment of Surgery, University of Alabama at Birmingham, Birmingham, Alabama; Institute for Cancer Outcomes and Survivorship, University of Alabama at Birmingham, Birmingham, Alabama. Electronic address: afonseca@uabmc.edu.

Funding

Using Modifiable Factors to Predict Risk of non-Guideline Concordant Treatment in Foregut Cancers: A Novel Implementation Science-based approachK23MD018383 · NIMHD · UNIVERSITY OF SOUTH ALABAMA · PI Annabelle L Fonseca · 2023 to 2026
$647k
NIMHD NIH HHS K23 MD018383
6 · The paper itself

Abstract

introductionCaregivers play a critical role in supporting patients with foregut cancer by providing financial, psychosocial, and practical support to patients throughout their treatment journey. However, caregiver perspectives on challenges and supports to accessing cancer care remain understudied. This qualitative study aims to understand caregiver-reported barriers to and facilitators of foregut cancer care.

methodsCaregivers of patients with foregut cancer who received treatment at a safety-net hospital in the Southeastern United States were purposively selected. Semistructured interviews were recorded, transcribed, and qualitatively analyzed. Using a grounded theory approach, themes were identified through open coding, and then a thematic coding structure was developed to create a codebook. Interrater reliability above 90% was achieved.

resultsA total of 15 participants between the ages of 31-82 y were interviewed. Most caregivers were Black (73%) and female (83%). Themes were identified across three levels: (1) physician and care team, (2) institution, and (3) policy. Limited access to the physician and care team, communication gaps, physician and health system mistrust, navigating a complex health system, and insurance-related barriers were frequently reflected challenges. Facilitators at the provider and institution levels included effective communication, accessible physician and care team, financial assistance programs, written appointment reminders, and support from ancillary staff.

conclusionsCaregivers, particularly those in socioeconomically disadvantaged settings, face substantial barriers that impact their ability to support patients with foregut cancer. Understanding the unique experiences of caregivers is critical to inform the development of targetable interventions that improve patient-centered oncological care.

Indexed as

CaregiversDigestive System NeoplasmsHealth Services AccessibilityPatient Acceptance of Health CareAgedAlabamaFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchSafety-net ProvidersBarriersCancerCaregiverFacilitatorsForegutHealth system

Identifiers

PMID40743653
PMCPMC12321212

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.