ArticleHealth expectations : an international journal of public participation in health care and health policy2025
From Dialogue to Action: Community Recommendations for Inclusive Research Participation Among Underrepresented Populations.
Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
2 citing papers in PubMed.
- Community Advisory Board Members Speak Out: Insights From an Opioid Overdose Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Digital and community-engaged approaches to improve research participant recruitment - Advice from forty convened experts.Journal of clinical and translational science · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
Abstract
introductionClinical research is a cornerstone to medical innovation, yet Black/African American and Latino populations are underrepresented in clinical research, contributing to poorer health outcomes.
objectiveThis study examined perspectives on clinical research recruitment and engagement among historically underrepresented populations.
methodsFocus group discussions (FGDs) were conducted with 59 community members and leaders from Baltimore, Maryland, who identified with groups underrepresented in research. Participants were recruited via a research registry, community outreach, and word-of-mouth referrals. Each FGD included 8-14 participants and was conducted in English or Spanish. Thematic analysis was applied following a systematic coding process.
resultsParticipants included 45 (76%) community members and 14 (24%) community leaders, with 44 (75%) identifying as women, 19 (32%) as Hispanic, and 40 (68%) as Black or African American. We identified key barriers to research participation and community-informed solutions to those barriers including: establishing community relationships to foster trust, sustaining engagement through active and transparent communication, boosting research visibility and awareness through multimodal outreach and messaging, and promoting accessibility with person-centered accommodations. Further, we demonstrate how the proposed recommendations would help enhance the relevance, rigor, and reach of clinical research projects.
conclusionUnderrepresentation of Black or African American and Latino individuals in research hinders health equity. Findings suggest that researchers should adopt tailored strategies aligned with community needs to foster inclusive engagement. PATIENT OR PUBLIC CONTRIBUTION: The design, implementation, and interpretation of results were informed by a Community Research Council. The research council is part of a larger project which is currently implementing the recommendations from these focus group discussions. Further, research participants received a brief synopsis of the discussion for any additional feedback or comment before implementation of recommendations.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.