Evidence map›Paper›PMID 40738606›Full record

ArticleBMJ paediatrics open2025

Validating a codesigned paediatric patient reported experience measure: a study protocol.

Karlen R Barr, Jessica Nikolovski, James R John, Leslie White, Sarah Elliott, Lynn McCartney, Claire Treadgold, Barb Vernon, Valsamma Eapen

Abstract readValidation Study
In one paragraph

Article in BMJ paediatrics open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Karlen R BarrAcademic Unit of Infant, Child and Adolescent Psychiatry, South Western Sydney Local Health District, Liverpool, New South Wales, Australia.
Jessica NikolovskiNHMRC Clinical Trials Centre, University of Sydney, Camperdown, New South Wales, Australia.
James R JohnAcademic Unit of Infant, Child and Adolescent Psychiatry, South Western Sydney Local Health District, Liverpool, New South Wales, Australia.
Leslie WhiteFaculty of Medicine, University of New South Wales, Sydney, New South Wales, Australia.
Sarah ElliottWomen's Healthcare Australasia and Children's Healthcare Australasia, Mitchell, Australian Capital Territory, Australia.
Lynn McCartneyThe Sydney Children's Hospitals Network, Sydney, New South Wales, Australia.
Claire TreadgoldFaculty of Medicine, University of New South Wales, Sydney, New South Wales, Australia.
Barb VernonWomen's Healthcare Australasia and Children's Healthcare Australasia, Mitchell, Australian Capital Territory, Australia.
Valsamma EapenAcademic Unit of Infant, Child and Adolescent Psychiatry, South Western Sydney Local Health District, Liverpool, New South Wales, Australia v.eapen@unsw.edu.au.ORCID http://orcid.org/0000-0001-6296-8306

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionPatient reported experience measures (PREMs) are important tools to include the voices of patients in healthcare provision. Children have a right to be included in decisions made about their care. A self-reported, locally validated and standardised paediatric PREM (pPREM) does not exist for use in Australian healthcare settings. Further, existing pPREMs are rarely codesigned with children or developed to be completed by children themselves. This study aims to validate a pPREM that will be completed by children within Australian healthcare settings. METHODS AND ANALYSIS: This study will involve three subphases, engaging children aged 6-11 years old who have had a hospital admission in the past 3 months. First, up to 25 children will participate in cognitive interviews to pilot test pPREM items. Using feedback from the interviews, population testing will occur with about 180 children at six Australian hospitals to determine the validity, reliability and feasibility of the pPREM. The study's implementation process will be evaluated through interviews with approximately 25-30 clinicians, managers and other stakeholders.

Indexed as

Patient Reported Outcome MeasuresAustraliaChildFemaleHumansInterviews as TopicMaleReproducibility of ResultsResearch DesignSurveys and QuestionnairesChild HealthPatient Rights

Identifiers

PMID40738606
PMCPMC12315035

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.