Evidence map›Paper›PMID 40737201›Full record

SynthesisHealth expectations : an international journal of public participation in health care and health policy2025

Identifying Common Patient-Oriented Priorities for Child and Adolescent Health Research and Care: A Systematic Review of Priority Setting Partnerships.

Jenna S Jessa, Muning Linda Zhang, Justin Bonhomme, Dawn P Richards, Diane L Lorenzetti, Christine T Chambers, Kathryn A Birnie

Abstract readSystematic Review
In one paragraph

Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Jenna S JessaDepartment of Anesthesiology, Perioperative & Pain Medicine, University of Calgary, Calgary, Canada.ORCID 0009-0003-9482-9089
Muning Linda ZhangFaculty of Occupation Science, University of Western Ontario, London, Canada.
Justin BonhommeDepartment of Anesthesiology, Perioperative & Pain Medicine, University of Calgary, Calgary, Canada.
Dawn P RichardsFive02 Labs Inc, Toronto, Canada.
Diane L LorenzettiHealth Sciences Library, University of Calgary, Calgary, Canada.
Christine T ChambersDepartment of Psychology and Neuroscience, Dalhousie University, Halifax, Canada.
Kathryn A BirnieDepartment of Anesthesiology, Perioperative & Pain Medicine, University of Calgary, Calgary, Canada.

Funding

The authors received no specific funding for this work.
6 · The paper itself

Abstract

contextJames Lind Alliance (JLA) Priority Setting Partnerships (PSPs) bring together patients, clinicians and carers (e.g., parents, guardians or family members) to identify the most important questions in specific areas of health research. The inclusion of diverse perspectives in PSPs can inform priority-guided investment in child health.

objectiveThe objective of this study is to explore top priority areas identified in JLA PSPs across a range of child health conditions. EVIDENCE REVIEW: This systematic review was designed to capture JLA PSPs conducted on health topics relevant to children and youth. Database searches were run in MEDLINE, CINAHL, Embase and APA PsycINFO, and a grey literature search was conducted on the JLA's official website for reports published up to 1 August 2023. English-language articles adhering to, or adapting from, the JLA PSP methodology were eligible for inclusion if they focused on child and youth health, development and well-being. A thematic synthesis was conducted to explore common themes amongst all the top 10 lists. MAIN

resultsThe systematic review identified 42 unique PSPs focused on child and youth health published from 2010 onwards. A total of 578 priorities were analysed across the top 10 priority lists. While the identified PSPs were conducted over a broad range of child health topic areas (e.g., general well-being, mental health, neurodevelopmental, and acute and chronic conditions), 18 common themes were identified across the top 10 priority lists. CONCLUSIONS AND RELEVANCE: Our findings provide an overview of the JLA PSP process and common areas of interest in child health research. This study can guide health research funding, health system responsiveness and policymakers' actions for widescale improvement in child and youth health. PATIENT OR PUBLIC CONTRIBUTION: A person with lived experience who is also an expert in patient partnership and has been involved in multiple JLA PSPs was engaged as a compensated member of the project team. They were involved in the initial idea for the review, the design of the review question and methodology, the analysis and interpretation of the review findings, and co-authorship of the manuscript.

Indexed as

Adolescent HealthChild HealthHealth PrioritiesAdolescentChildHumansadolescentchildhealth policyhealth researchJames Lind Alliancepatient engagementpriority setting

Identifiers

PMID40737201
PMCPMC12309730

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.