Evidence map›Paper›PMID 40737193›Full record

ArticleJournal of palliative medicine2026

Why Is Community-Based Palliative Care Declined? Older Adult, Caregiver, and Provider Perspectives.

Kira G Sheldon, Kathryn H Bowles, Lori King, Elizabeth A Luth

Abstract read
In one paragraph

Article in Journal of palliative medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Kira G SheldonRutgers University, New Brunswick, New Jersey, USA.ORCID 0009-0006-7076-469X
Kathryn H BowlesCenter for Home Care Policy & Research, VNS Health, University of Pennsylvania School of Nursing, New York City, New York, USA.
Lori KingCenter for Home Care Policy & Research, VNS Health, New York City, New York, USA.
Elizabeth A LuthDepartment of Family Medicine and Community Health, Robert Wood Johnson Medical School, Rutgers University, New Brunswick, New Jersey, USA.ORCID 0000-0003-1496-1235

Funding

Transforming residential palliative care for persons with dementia through behavioral economics and data scienceP30AG064105 · NIA · UNIVERSITY OF PENNSYLVANIA · PI KARLAWISH, JASON H · 2019 to 2023
$3.8M
NIA NIH HHS P30 AG064105
6 · The paper itself

Abstract

backgroundPalliative care can help manage health challenges of seriously ill individuals, including persons living with dementia (PLWD), but is often declined.

objectiveExplore why seriously ill individuals and caregivers decline palliative care.

methodsA pilot study using semi-structured interviews with three Medicare Advantage plan members and 15 caregivers, including 13 caregivers of PLWD, who declined palliative care (PC) within the previous year and focus groups with five PC staff.

resultsReasons for declining included mis-association with hospice, not seeing additional benefit to current care, and reluctance to change current care. PC staff provided additional reasons: challenges engaging with the outreach team, need for family-based decision-making, and reluctance to engage with unfamiliar persons.

conclusionsIncremental adjustments in PC communication may facilitate uptake, including providing explanations that are distinct from hospice, tailored to care needs, focused on reducing illness burden, and introduced by the current care team.

Indexed as

CaregiversPalliative CareAgedAged, 80 and overDecision MakingFemaleFocus GroupsHumansInterviews as TopicMaleMedicare Part CMiddle AgedPilot ProjectsUnited Statescaregiversdecision-makingdelivery of health careMedicare Part Cpalliative care

Identifiers

PMID40737193
PMCPMC12869426

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.