Evidence map›Paper›PMID 40736357›Full record

ArticleInternational journal of qualitative studies on health and well-being2025

Understanding symptoms in the lives of adult patients with acute or chronic illness: a phenomenological study of patient experiences.

Malene Missel, Linda Kahr Andersen, Camilla Corvinius, Maria Camilla Mathiasen, Pernille Orloff Donsel, Mai Nanna Schønau, Helle Pappot, Nanna Witting, Melissa Culligan, Giulia Locatelli and 2 more

Abstract read
In one paragraph

Article in International journal of qualitative studies on health and well-being, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Article
  6. Qualitative Research-What You Need to Know (For Now).Acta anaesthesiologica Scandinavica · 2026
    Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Malene MisselDepartment of Cardiothoracic surgery, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.ORCID 0000-0003-3267-8038
Linda Kahr AndersenCopenhagen Neuromuscular Center, Department of Neurology, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.ORCID 0000-0002-4780-7739
Camilla CorviniusDepartment of Cardiothoracic surgery, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.ORCID 0009-0007-4958-5897
Maria Camilla MathiasenDepartment of Oncology, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.ORCID 0000-0003-0967-0273
Pernille Orloff DonselDepartment of Cardiothoracic surgery, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.ORCID 0000-0003-4798-752X
Mai Nanna SchønauDepartment of Cardiothoracic surgery, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.ORCID 0000-0002-4814-5888
Helle PappotDepartment of Clinical Medicine, University of Copenhagen, København, Denmark.ORCID 0000-0002-3570-5372
Nanna WittingDepartment of Clinical Medicine, University of Copenhagen, København, Denmark.ORCID 0000-0002-0664-0709
Melissa CulliganThoracic Surgery Research, Department of Thoracic Medicine and Surgery, Temple University Hospital Philadelphia, Philadelphia, PA, USA.
Giulia LocatelliDepartment of Medicine and Surgery, University of Milano-Bicocca, Milano, Italy.ORCID 0000-0003-1841-8379
Mary JardenDepartment of Clinical Medicine, University of Copenhagen, København, Denmark.ORCID 0000-0003-3040-8384
Karin PiilDepartment of Clinical Medicine, University of Copenhagen, København, Denmark.ORCID 0000-0001-7972-4674

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeExploring how patients with acute and/or chronic illnesses experience symptoms.

methodsUsing a phenomenological approach, interviews were conducted with patients to gain insights into their lived experiences and the meanings they attribute to symptoms. Phenomenological concepts of lifeworld, body and embodiment, intentionality, and existential anxiety provide lenses for examining the realities of patients' experiences.

resultsThree central themes emerged from the Ricoeur inspired analysis: Perception of an altered body presence, which highlights how illness transforms the perception of the body from a "silent" part of the self to an intrusive presence; Symptoms as a threat to existence, illuminating how symptoms confront patients with vulnerability, mortality, and existential uncertainty; and Loss and reclaiming of control, describing the ongoing struggle patients face between feelings of helplessness and efforts to regain autonomy in daily life.Symptoms are not merely indicators of illness but are intertwined with patients' identities and their sense of meaning in life.

conclusionInsights emphasize the importance of addressing both the biological and existential dimensions of symptoms. Face-to-face clinical encounters offer a shared opportunity to create reflective spacesValidating coping strategies and supporting patients in reclaiming control, clinicians can nurture resilience, dignity, and a comprehensive approach to symptom (self)management.

Indexed as

Adaptation, PsychologicalAcute DiseaseAdultAgedAnxietyChronic DiseaseFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchSelf ConceptUncertaintyacute and chronic illnessphenomenologyqualitative studyRicoeursymptom experiencesSymptom science

Identifiers

PMID40736357
PMCPMC12312141

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.