ArticleSAGE open nursing
Patient Participation in Home Care: A Longitudinal Exploration of Experiencing, Refraining, and Losing Involvement.
Article in SAGE open nursing. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Ensuring safe and personalized healthcare requires that patients have opportunities to express their concerns and influence their treatment decisions, which is a core value in healthcare. Such involvement is crucial for realizing the ideal of ageing in place. Despite efforts to increase patient participation, significant challenges persist, especially among older people with complex health needs. Aim: The aim of this study was to explore an older adult's experiences of patient participation within a care triad, as reflected in the interactions and perspectives of the older person, healthcare professionals, and a family caregiver in the Norwegian home-care context. Methods: This study employed a longitudinal single-case study with embedded units. Over 1 year, repeated interviews were performed with an older adult, his daughter, his general practitioner, and his responsible home-care nurse. Content analysis was used to analyze the data. Findings: The analysis resulted in three themes representing the participants' experiences and points of view regarding the older adult's participation in care: Conclusions: The findings indicate that the older adult desired involvement despite occasional reluctance and that his participation was affected by interactional and contextual factors. Professionals must realize that the starting point of patient involvement is the patient's perspective and understanding of care needs, which the professionals have a joint responsibility to meet.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.