Evidence map›Paper›PMID 40731376›Full record

ArticleJournal of applied research in intellectual disabilities : JARID2025

'It's Really Who They Are and What They Want': Staff Perspectives on Supporting Autonomy for Autistic Adults With Intellectual Disabilities.

Jackie Ryan, Heather M Brown, Anne Borden, Christina Devlin, Adam Kedmy, Austin Lee, David B Nicholas, Sandy Thompson-Hodgetts

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of applied research in intellectual disabilities : JARID, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Jackie RyanFaculty of Rehabilitation Medicine, University of Alberta, Edmonton, Canada.ORCID https://orcid.org/0000-0003-3089-4888
Heather M BrownFaculty of Education, University of Alberta, Edmonton, Canada.
Anne BordenAutistic Community Partner (see Positionality Statement for more information).
Christina DevlinAutistic Community Partner (see Positionality Statement for more information).
Adam KedmyAutistic Community Partner (see Positionality Statement for more information).
Austin LeeAutistic Community Partner (see Positionality Statement for more information).
David B NicholasFaculty of Social Work, University of Calgary, Calgary, Alberta, Canada.
Sandy Thompson-HodgettsDepartment of Occupational Therapy, University of Alberta, Edmonton, Canada.

Funding

Autism EdmontonAutism Research CentreSocial Sciences and Humanities Research Council 890-2020-12
6 · The paper itself

Abstract

backgroundAutonomy is a crucial component of self-determination, yet it is limited for Autistic individuals, especially those with co-occurring intellectual disabilities. We explored how professionals supported Autistic people with intellectual disabilities' autonomy. MATERIALS AND

methodsThis qualitative study used a community-based participatory approach. Nine staff who worked within a post-secondary transition programme to support Autistic young adults with intellectual disabilities were interviewed. Data were analysed using reflexive thematic analysis.

resultsThe quality and depth of relationships between staff and Autistic adults with intellectual disabilities, and a safe, supportive environment, were critical to supporting autonomy. Staff also identified several skill areas that would benefit program participants to exert their autonomy, including self-advocacy, interoceptive awareness, working with others, and understanding choices.

conclusionsThis crucial information for supporting autonomy for Autistic adults with intellectual disabilities provides a basis for enacting programme change to promote self-determination. Recommendations for staff and programme development are provided.

Indexed as

Attitude of Health PersonnelAutistic DisorderHealth PersonnelIntellectual DisabilityPersonal AutonomyProfessional-Patient RelationsAdultFemaleHumansMaleMiddle AgedQualitative ResearchYoung Adultadultsautismautisticautonomyintellectual disabilitiesparticipatory researchself‐determination

Identifiers

PMID40731376
PMCPMC12307767

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.