ArticleHealth expectations : an international journal of public participation in health care and health policy2025
Making Room for Every Voice: Reimagining Person-Centred Care in the Neurosciences.
Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- An International Survey of Patients with Ataxia: Trends in Patient-Reported Symptoms.Cerebellum (London, England) · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
backgroundThis Special Issue of Health Expectations brings together 38 articles that exemplify the growing commitment to person-centred care in the neurosciences. Moving beyond a historically brain-centric model, these contributions reflect a more human discipline that values lived experience alongside clinical expertise. METHODS/
resultsSpanning a wide range of neurological conditions, life stages and care settings, the papers explore interconnected themes including co-creation, identity, equity, communication, service redesign, emotional well-being, innovation and community engagement. The authors in this collection demonstrate that care becomes not only more effective but also more ethical when people are recognised as active partners rather than passive recipients. From co-designed tools and culturally responsive resources to narrative inquiry and community-led research, these works reveal the transformative power of relational approaches that reorient systems, promote autonomy and respond to what truly matters to those living with neurological conditions.
conclusionsTogether, these articles challenge longstanding hierarchies and power dynamics, advocating for care that is grounded in trust, reciprocity and compassion. They are more than a snapshot of current practice; they are a call to action, a provocation to imagine what neurological care could become. At its heart, this Special Issue invites researchers, clinicians and communities to co-create a neuroscience that is more advanced and more attuned to the lives it seeks to serve. PATIENT OR PUBLIC CONTRIBUTION: This Special Issue was developed with a focus on highlighting the voices, experiences and expertise of people living with neurological conditions, their families and communities. Many of the 38 articles featured were co-produced or co-authored with individuals with lived experience, and we, as Guest Editors, have intentionally curated the issue to centre these perspectives. While patients or members of the public were not directly involved in the writing of this Editorial, their contributions are reflected throughout the Special Issue in the form of participatory research, co-created resources and narrative accounts. The Editorial itself is informed by these works and seeks to honour their insights by amplifying their relevance and impact within the broader neuroscientific community.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.