Evidence map›Paper›PMID 40707157›Full record

ArticleBMJ open2025

Outcome measures used and psychometrically tested in children with upper limb loss or difference: a scoping review protocol.

Abigail Stepnitz, Sara Morgan, Caroline Gormley, Jessica Schiller, Meghan Munger, Jennifer Laine, Michelle J Hall

Abstract read
In one paragraph

Article in BMJ open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Abigail StepnitzDepartment of Orthotics/Prosthetics, Moira Tobin Wickes Orthotics Program, Ann & Robert H Lurie Children's Hospital of Chicago, Chicago, Illinois, USA.
Sara MorganResearch Department, Gillette Children's, Saint Paul, Minnesota, USA.ORCID http://orcid.org/0000-0001-8059-3659
Caroline GormleyDivision of Rehabilitation Medicine, University of Minnesota, Minneapolis, Minnesota, USA.
Jessica SchillerRehabilitation Therapies Department, Gillette Children's, Saint Paul, Minnesota, USA.
Meghan MungerOutcomes Department, Gillette Children's, Saint Paul, Minnesota, USA.ORCID http://orcid.org/0000-0002-9859-6572
Jennifer LaineResearch Department, Gillette Children's, Saint Paul, Minnesota, USA.
Michelle J HallOrthotics, Prosthetics, Seating, and Casting Department, Gillette Children's, Saint Paul, Minnesota, USA mjhall@gillettechildrens.com.ORCID http://orcid.org/0009-0008-5585-945X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionChildren with upper limb loss or difference (ULLD) require individualised and developmentally appropriate clinical care. To guide this specialised care, outcome measures can be used to assess important constructs, such as physical function, health-related quality of life (HRQoL) and satisfaction with medical treatments and services. However, there is limited research available on which outcome measures are used to assess these constructs and whether they have been psychometrically assessed in children with ULLD who may or may not use a prosthesis. Thus, the purpose of this scoping review is (1) to determine which outcome measures are used to assess physical function, HRQoL and satisfaction in paediatric patients with ULLD and (2) to identify articles that include children with ULLD in psychometric assessments of these outcome measures. Findings of these studies will be reported. This review will inform healthcare professionals on which outcome measures assessing function, HRQoL and satisfaction have been psychometrically tested for use in children with ULLD. It will also inform future research on outcome measurement in this population. METHODS AND ANALYSIS: A two-phase scoping review will be conducted in which PubMed, Web of Science and CINAHL will be searched: first, to identify which outcome measures are used to assess physical function, HRQoL and satisfaction in children with ULLD and, second, to determine whether those measures have been psychometrically assessed for use in this population. Teams of two reviewers will review articles for eligibility and extract information from eligible articles. Tie-breaking will be conducted by a third reviewer. Narrative summaries will be used to describe the findings of this scoping review. ETHICS AND DISSEMINATION: No ethical approval is needed. The results of the review will be submitted for publication in a peer-reviewed journal and presented at relevant conferences. REGISTRATION: The scoping review that applies this protocol has been registered on Open Science Framework (https://doi.org/10.17605/OSF.IO/7UGWB).

Indexed as

Outcome Assessment, Health CareQuality of LifeUpper ExtremityChildHumansPsychometricsResearch DesignScoping Reviews as TopicAmputation, SurgicalChildMusculoskeletal disordersPaediatric orthopaedicsPatient Reported Outcome MeasuresREHABILITATION MEDICINE

Identifiers

PMID40707157
PMCPMC12306228

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.