Evidence map›Paper›PMID 40704533›Full record

ArticleChild: care, health and development2025

Risk and Protective Factors for Burnout Among Parents of Children With Complex Care Needs: Parents' Perspectives.

Nathalie J S Patty, Karen M van Meeteren, Minke Verdonk, Marjolijn Ketelaar, Carlo Schuengel, Agnes M Willemen

Abstract read
In one paragraph

Article in Child: care, health and development, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Nathalie J S PattyFaculty of Behavioural and Movement Sciences, Section Clinical and Family Studies, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.ORCID https://orcid.org/0000-0002-6226-9756
Karen M van MeeterenFaculty of Behavioural and Movement Sciences, Section Clinical and Family Studies, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.
Minke VerdonkExpert by experience, Parent of a child with complex care needs, the Netherlands.
Marjolijn KetelaarUMC Utrecht Brain Center, University Medical Center Utrecht, Utrecht, the Netherlands.ORCID https://orcid.org/0000-0002-8324-518X
Carlo SchuengelFaculty of Behavioural and Movement Sciences, Section Clinical and Family Studies, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.ORCID https://orcid.org/0000-0001-5501-3341
Agnes M WillemenFaculty of Behavioural and Movement Sciences, Section Clinical and Family Studies, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.ORCID https://orcid.org/0000-0002-0912-2608

Funding

Netherlands Organization for Health Research and Development 641001103Stichting Wetenschappelijk Onderzoek's Heeren Loo
6 · The paper itself

Abstract

backgroundParental burnout has been proposed as resulting from a persistent imbalance between stress-enhancing factors (demands/risk factors) and stress-alleviating factors (resources/protective factors). Parents of children with complex care needs (CCN) face this imbalance more often than parents in general. To address this, we need to know which factors are considered risky and protective for burnout from the perspectives of parents of children with CCN. To facilitate targeted interventions, this study sought to explore both risk and protective factors associated with burnout as perceived by parents of children with CCN.

methodsWe conducted semi-structured interviews with 38 parents, who recognized or identified themselves with burnout-related thoughts and feelings. Parents were selected for maximal variation, based on parental, child and family characteristics. The data was analysed through inductive thematic analysis.

resultsFifteen themes, divided into three categories, were identified: (1) 'the parent' encompassing factors intrinsic to the parent, such as emotional factors and internal drivers, and physical health; (2) 'the environment interacting with the parent' including organization of care, social support and socio-economic factors; and (3) 'the sum of all factors'-themes underscoring the collective impact of the context including the caregiving and parental responsibility, and the perception of no option but to endure. Most factors were identified as both risk and protective factors, underscoring the dynamic nature of burnout.

conclusionParticipating parents ascribed burnout to unique combinations of risk and protective factors. Notably, these factors extended beyond the personal sphere to encompass societal structures that current conceptual models for dealing with burnout often ignore. From the perspective of parents, broad multisystem approaches to address parental burnout would likely appear most relevant.

Indexed as

Burnout, PsychologicalCaregiversChildren with DisabilitiesParentsAdultChildChild, PreschoolFemaleHumansMaleMiddle AgedParent-Child RelationsProtective FactorsQualitative ResearchRisk FactorsSocial Supportburnoutcaregiver burnoutparental burnoutparentingparents of children with complex care needs

Identifiers

PMID40704533
PMCPMC12288110

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.