Evidence map›Paper›PMID 40701592›Full record

ArticleBMJ open2025

Addressing the needs and identifying supports for parents of chronically ill adolescents and young adults in their shared transition from paediatric to adult care: a scoping review protocol.

Pranshu Maini, Claudia Tersigni, Samantha K Micsinszki, Sarah Cairns, Kate Murray, Karen Frost

Abstract read
In one paragraph

Article in BMJ open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Pranshu MainiFaculty of Health Sciences, McMaster University, Hamilton, Ontario, Canada pranshu.maini787@gmail.com.ORCID http://orcid.org/0009-0005-3573-9133
Claudia TersigniWestern University, Schulich School of Medicine & Dentistry, London, Ontario, Canada.
Samantha K MicsinszkiCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada.ORCID http://orcid.org/0000-0002-1357-1158
Sarah CairnsMcMaster University Health Sciences Library, Hamilton, Ontario, Canada.ORCID http://orcid.org/0009-0007-5507-4735
Kate MurrayPatient Partner, Oakville, Ontario, Canada.
Karen FrostDivision of Gastroenterology, Hepatology and Nutrition, The Hospital for Sick Children, Toronto, Ontario, Canada.ORCID http://orcid.org/0009-0007-0918-0844

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionThe transition from paediatric to adult healthcare marks a pivotal period for chronically ill adolescents, as they transition from a highly supportive and family-oriented environment to an adult-oriented and a more individual-oriented healthcare system that places a greater emphasis on personal responsibility and independence. Parents, given their firsthand experience managing their child's healthcare, play a central role in ensuring a smooth and successful transition, yet their perspectives on the barriers and facilitators of this complex process remain vastly underexplored. This scoping review aims to assess and provide comprehensive insights into parents' perceptions of the successes and challenges during their adolescents' transition from paediatric to adult healthcare. METHODS AND ANALYSIS: This scoping review is led by patient partners and will be guided by the Peters ETHICS AND DISSEMINATION: This scoping review, through the broad and systematic mapping of existing literature, aims to provide a foundation for developing targeted support systems, strategies and interventions to address the unique needs and barriers faced by parents and caregivers of chronically ill adolescents during this critical transition to adult care.

Indexed as

ParentsTransition to Adult CareAdolescentAdultChronic DiseaseHumansResearch DesignScoping Reviews as TopicSocial SupportYoung AdultAdolescentCaregiversChronic DiseaseInflammatory bowel disease

Identifiers

PMID40701592
PMCPMC12306332

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.