ArticleFrontiers in health services2025
Trust, consistency and transparency: in-home respite needs and preferences of people living with dementia and their carers.
Article in Frontiers in health services, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed, 1 synthesis or guideline pooled it.
- Unpaid dementia carers: a scoping review of the caregiving trajectory and changing short break needs.Frontiers in health services · 2025Pooled it
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Purpose: To identify the needs, preferences, and perspectives of people living with dementia and their carers to inform design and implementation of an in-home respite service. Design/Methodology: Exploratory, interpretivist, pre- implementation qualitative study using Consolidated Framework for Implementation Research. Participants: People living with dementia and carers. Data collection: Multi-person and individual semi-structured interviews. Findings: 15 participants: Four people living with dementia, 11 carers. Carers are exhausted and want a say in the development and delivery of services. People living with dementia and carers need safety, trust in respite staff and in the organisation, consistency, additional supports, and clear, transparent communication. Future directions: Findings will inform in-home dementia respite models of care, better supporting family carers and people living with dementia to age-in-place. Recommendations: provide an orientation session; clear, transparent communication; provide/refer carers to wrap-around supports; ensure consistency including having consistent carers, arrival times, services provided and routines; emergency and scheduled options.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.