Evidence map›Paper›PMID 40694913›Full record

ArticlePatient education and counseling2025

Qualitative study of Black and Latino (a/e) caregiver participation on family-centered rounds.

Katie Margolis, Kathryn I Pollak, Laura Fish, Margaret Falkovic, Pedro Gomez Altamirano, Heather Parnell, Victoria Parente

Abstract read
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Article in Patient education and counseling, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

7 authors.

Katie MargolisDepartment of Pediatrics, Duke University School of Medicine, Durham, NC, USA.
Kathryn I PollakDepartment of Population Health Sciences, Duke University School of Medicine, Durham, NC, USA; Cancer Prevention and Control, Duke Cancer Institute, Durham, NC, USA.
Laura FishDepartment of Family Medicine and Community Health, Duke University School of Medicine, Durham, NC, USA.
Margaret FalkovicDuke Cancer Institute, Duke University School of Medicine, Durham, NC, USA.
Pedro Gomez AltamiranoDepartment of Family Medicine and Community Health, Duke University School of Medicine, Durham, NC, USA.
Heather ParnellDuke Global Health Institute, Duke University, Durham, NC, USA.
Victoria ParenteDepartment of Pediatrics, Duke University School of Medicine, Durham, NC, USA. Electronic address: Victoria.parente@duke.edu.

Funding

Pilot testing a Trauma-Informed Clinician Communication Intervention for Family-Centered RoundsK23MD018433 · NIMHD · DUKE UNIVERSITY · PI Victoria Parente · 2024 to 2026
$481k
NIMHD NIH HHS K23 MD018433
6 · The paper itself

Abstract

backgroundFamily-centered rounds (FCR), multi-disciplinary rounds at bedside that involve the patient and family, has become the standard of care in pediatric hospitalizations. Caregiver participation on FCR improves shared-decision making and communication among providers, patients, and families. Evidence suggests Black and Latino (a/e) caregivers participate less during FCR than White caregivers, likely due to interpersonal and structural inequities, however contributing factors have not been adequately explored.

objectiveTo better understand factors positively and negatively influencing Black and Latino (a/e) participation during FCR. DESIGN/

methodsWe conducted a qualitative study of Black and Latino(a/e) caregivers and attending clinicians of hospitalized children admitted to a general pediatrics team at a tertiary care children's hospital. We conducted virtual semi-structured interviews to assess factors that promoted and hindered caregiver participation on FCR. Clinician interviews addressed experiences encouraging caregiver participation on FCR with a focus on Black and Latino(a/e) caregivers. Investigators worked together to organize codes into common themes, select representative quotes, and create a conceptual framework.

resultsWe conducted 21 interviews (14 caregivers, 7 clinicians) at an academic medical center. From our interviews, caregivers and their clinicians identified four major themes that influenced caregiver participation during rounds: 1) verbal and nonverbal interpersonal communication, 2) shared understanding and language, 3) structural factors (team size and time pressures), and 4) race, racism, and previous healthcare experiences.

conclusionsCaregivers and their clinicians identified structural and modifiable clinician and health system factors that can promote Black and Latino (a/e) participation on FCR. Future research and interventions focused on these factors may improve not only racial inequities in clinician-caregiver communication, but also pediatric health outcomes.

Indexed as

Black or African AmericanCaregiversDecision Making, SharedHispanic or LatinoProfessional-Family RelationsTeaching RoundsAdultChildChild, PreschoolCommunicationFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchCommunicationFamily-centered roundsHealth Equity

Identifiers

PMID40694913
PMCPMC12668282

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.