Evidence map›Paper›PMID 40694801›Full record

ArticleJournal of pediatric psychology2025

Stigma in differences of sex development: a scoping review.

Canice E Crerand, Kristina I Suorsa-Johnson, Michelle M Ernst, Y Frances Fei, Jennifer Hansen-Moore, Nadia Jaffal, LaTeesa N James, Tess Jewell, Jodie Johnson, Elizabeth Lanphier and 7 more

Abstract readScoping Review
In one paragraph

Article in Journal of pediatric psychology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Canice E CrerandDepartment of Pediatrics, The Ohio State University College of Medicine, Columbus, OH, United States.ORCID 0000-0003-0040-6396
Kristina I Suorsa-JohnsonDivision of Pediatric Psychology and Behavioral Health, Department of Pediatrics, University of Utah Medical School, Salt Lake City, UT, United States.ORCID 0000-0002-4842-1766
Michelle M ErnstDepartment of Pediatrics, University of Cincinnati Medical Center, Cincinnati, OH, United States.
Y Frances FeiDivision of Pediatric and Adolescent Gynecology, Nationwide Children's Hospital, Columbus, OH, United States.ORCID 0000-0001-9439-9136
Jennifer Hansen-MooreDepartment of Pediatrics, The Ohio State University College of Medicine, Columbus, OH, United States.
Nadia JaffalUniversity of Michigan, Ann Arbor, MI, United States.
LaTeesa N JamesUniversity of Michigan, Ann Arbor, MI, United States.
Tess JewellUniversity of Wisconsin School of Medicine and Public Health, Madison, WI, United States.
Jodie JohnsonDivision of Human Genetics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.
Elizabeth LanphierEthics Center, Cincinnati Children's Hospital Medical Center, Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States.
Christine M PennesiDivision of Pediatric and Adolescent Gynecology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.
Hailey UmbaughCenter for Biobehavioral Health, The Research Institute at Nationwide Children's Hospital, Columbus, OH, United States.
Madeline McClinchieCenter for Biobehavioral Health, The Research Institute at Nationwide Children's Hospital, Columbus, OH, United States.
Kate M SaylorUniversity of Michigan, Ann Arbor, MI, United States.
Alexandra BrittDepartment of Surgery, University of Utah Medical School, Salt Lake City, UT, United States.
Society of Pediatric Psychology Differences of Sex Development Special Interest Group
David E SandbergDivision of Pediatric Psychology, Department of Pediatrics, University of Michigan Medical School, Ann Arbor, MI, United States.ORCID 0000-0002-7389-8283

Funding

Disorders of Sex Development: Platform for Basic and Translational ResearchR01HD068138 · NICHD · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI SANDBERG, DAVID ERIC, VILAIN, ERIC J. · 2011 to 2015
$4.0M
Disorders/Differences of Sex Development (DSD) - Translational Research NetworkR01HD093450 · NICHD · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI SANDBERG, DAVID ERIC, VILAIN, ERIC J. · 2018 to 2022
$3.9M
Adolescents and Young Adults: Dilemmas, Education, and Choices Impacting Decisions (AYAs DECIDe) StudyK23HD113825 · NICHD · UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH · PI Kristina Irene Suorsa-Johnson · 2024 to 2026
$502k
Eunice Kennedy Shriver National Institute of Child Health and Human Development K23HD113825NICHD NIH HHS K23 HD113825NICHD NIH HHS R01 HD068138NICHD NIH HHS R01 HD093450
6 · The paper itself

Abstract

objectiveDifferences of sex development (DSD) affect somatic sex determination and differentiation and are associated with stigmatization risks. This scoping review evaluated reports of stigma experiences described by individuals with DSD, caregivers of individuals with DSD, and non-affected individuals (e.g., laypeople).

methodsA multi-step, iterative process was used for the search strategy. Databases utilized included Cochrane Library, PubMed, Ovid MEDLINE (Ovid MEDLINE(R) and Epub Ahead of Print, In-process & Other Non-Indexed Citations, Daily and Versions(R)), Embase (Elsevier), CINAHL Complete (EBSCO), PsychInfo (EBSCO), LGBT Life (EBSCO), and Scopus (Elsevier). Peer-reviewed, English language, quantitative or qualitative studies that evaluated stigma or stigma-related attitudes toward individuals with DSD published from 1955 through August 2024 were included. Stigma was categorized as felt (feared rejection), enacted (bullying), or systemic/structural (e.g., institutionalized policies).

resultsSearches yielded 6,892 articles after eliminating duplicates. Following full-text screening, 206 articles were included in the review indicating that DSD-specific stigma was measured. However, measuring stigma was a specific study aim in a minority of publications (51 articles, 25%), with evidence for felt (164 articles, 80%), enacted (127 articles, 62%), and structural/systemic stigma (70 articles, 34%) reported across informants and DSD diagnosis. Few studies utilized validated DSD-specific stigma measures.

conclusionsStigma is commonly reported in the literature across the spectrum of DSD conditions but is rarely measured. Stigma was predominantly assessed using open-ended questions, with limited use of validated measures. Results have implications for clinical care, including stigma-related screening and intervention and the need for future research using standardized stigma assessments.

Indexed as

Disorders of Sex DevelopmentSocial StigmaFemaleHumansMaleSexual and Gender Minoritiesdifferences of sex developmentdisorders of sex developmentintersexscoping reviewstigma

Identifiers

PMID40694801
PMCPMC12451234

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.