Evidence map›Paper›PMID 40689526›Full record

ArticleHepatology communications2025

Educational, financial, logistical, emotional, and social needs among patients with hepatocellular carcinoma.

Debbiesiu L Lee, Sophia Hon, Daniela Prieto Bello, Lucia Fernandez, Patricia D Jones

Abstract read
In one paragraph

Article in Hepatology communications, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Debbiesiu L LeeDepartment of Educational and Psychological Studies, School of Education and Human Development, University of Miami, Coral Gables, Florida, USA.ORCID 0000-0003-3484-0457
Sophia HonDepartment of Educational and Psychological Studies, School of Education and Human Development, University of Miami, Coral Gables, Florida, USA.ORCID 0000-0002-9168-3796
Daniela Prieto BelloDepartment of Medicine, Division of Digestive Health and Liver Diseases, University of Miami Miller School of Medicine, Miami, Florida, USA.
Lucia FernandezDepartment of Educational and Psychological Studies, School of Education and Human Development, University of Miami, Coral Gables, Florida, USA.
Patricia D JonesDepartment of Medicine, Division of Digestive Health and Liver Diseases, University of Miami Miller School of Medicine, Miami, Florida, USA.

Funding

Racial and Ethnic Disparities in Hepatocellular Carcinoma Surveillance Among Patients with Cirrhosis Across Five Safety Net OrganizationsR01MD017063 · NIMHD · PALO ALTO VETERANS INSTIT FOR RESEARCH · PI Robert John Wong · 2022 to 2026
$2.8M
Evaluating the impact of genetic ancestry and HIV on cirrhosis progression and response to statin therapy among a diverse multi-ethnic cohort of patients with cirrhosisU01DK130185 · NIDDK · UNIVERSITY OF MIAMI SCHOOL OF MEDICINE · PI David Seth Goldberg · 2021 to 2026
$2.4M
The Impact of Genetic Ancestry on Racial Disparities in Hepatocellular Carcinoma Risk and MortalityK08CA255413 · NCI · UNIVERSITY OF MIAMI SCHOOL OF MEDICINE · PI Patricia Denise Jones · 2022 to 2026
$1.2M
Genetic and Environmental risk of NAFLD-related HCC In All Latinos: the GENIAL StudyU01CA288421 · NCI · UNIVERSITY OF MIAMI SCHOOL OF MEDICINE · PI Yvonne Nicole Flores, Patricia Denise Jones · 2023 to 2026
$1.2M
NCI NIH HHS K08 CA255413NCI NIH HHS U01 CA288421NIDDK NIH HHS U01 DK130185NIMHD NIH HHS R01 MD017063
6 · The paper itself

Abstract

backgroundPatient navigation has been proposed as a primary method of facilitating successful treatment and outcomes for cancer patients. In order to design a navigation program specific for HCC patients, the aims of this study were 3-fold: (1) to identify the needs of HCC patients, (2) to identify barriers to the successful treatment of HCC, and (3) to identify specific supports needed for the successful treatment of HCC.

methodsIn-depth qualitative interviews, lasting 60-90 minutes, were conducted with 42 individuals, including 14 patients, 7 caregivers, 8 advocates, 2 research coordinators, and 11 providers. The specialty of the provider participants included Hepatology, Transplant Surgery, Medical Oncology, Radiation Oncology, and Interventional Radiology. Advanced practice providers, social workers, and nurse navigators were also included. Patients, caregivers, and providers were recruited from 2 healthcare systems in South Florida. Advocates were recruited through collaboration with the Global Liver Institute and the Hepatitis B Foundation.

resultsThe interviews identified 5 overarching themes representing the navigation needs of HCC patients: (1) Education/Health Literacy, (2) Financial Resources, (3) Coordination of Care, (4) Emotional/Mental Health Management, and (5) Social Support. These overarching themes were composed of various subthemes, which further delineated the specific needs that patients and caregivers have in the context of their HCC treatment.

conclusionsThis study provides valuable insight into the needs of patients with HCC and their caregivers. Key stakeholders in the field of HCC provided valuable insights into the multidimensional needs of patients with HCC, identifying areas to target with high-quality interventions. To best meet the treatment needs of patients with HCC, successful navigation should include interventions targeted at addressing each of these areas of need.

Indexed as

Carcinoma, HepatocellularHealth Services Needs and DemandLiver NeoplasmsPatient NavigationAdultAgedCaregiversEmotionsFemaleHealth LiteracyHumansMaleMiddle AgedNeeds AssessmentQualitative ResearchSocial Supportcare coordinationHCChealth literacynavigation

Identifiers

PMID40689526
PMCPMC12262971

What OpenQuestion holds

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LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.