Evidence map›Paper›PMID 40687531›Full record

ArticleInternational journal of developmental disabilities2025

Cross-cultural adaptation and validation of the Autism Family Experience Questionnaire to an Indian context.

Calida Frieda Pinto, Vani R Lakshmi, Shivani Tiwari

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Article in International journal of developmental disabilities, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

3 authors.

Calida Frieda PintoDepartment of Speech and Hearing, Manipal College of Health Professions, Manipal Academy of Higher Education, Manipal, India.
Vani R LakshmiDepartment of Data Science, Prasanna School of Public Health, Manipal Academy of Higher Education, Manipal, India.ORCID https://orcid.org/0000-0003-2473-5311
Shivani TiwariDepartment of Speech and Hearing, Manipal College of Health Professions, Manipal Academy of Higher Education, Manipal, India.ORCID https://orcid.org/0000-0002-4345-5000

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Purpose: The Autism Family Experience Questionnaire (AFEQ) is a 48-item questionnaire that assesses parental priorities for outcomes of early intervention of parents of children with autism spectrum disorder (ASD). The present study aims to adapt and validate the AFEQ to the Indian context as an attempt to provide a measure of family life and parent-reported outcomes before and after intervention. Methods: Seventy-five parents of children with ASD were recruited for the study. The adapted version of AFEQ was given to five experienced professionals for content validation to assess cultural suitability in the Indian context. The test-retest reliability was assessed by re-administering the questionnaire to 40 parents within 15 to 30 days of initial administration. Results: The Cronbach's alpha value for the overall AFEQ score was 0.64, indicating acceptable internal consistency. Cohen's kappa agreement was found to be 0.62, indicating good agreement between the five professionals. The adapted AFEQ scale showed good test-retest reliability (ICC = 0.72). Conclusion: Results of our study indicated that AFEQ has good internal consistency, test-retest reliability, and content validity. The adapted AFEQ is a reliable and valid assessment tool that can be used to assess the parental experiences of families with ASD in the Indian context.

Indexed as

Autism spectrum disorderearly interventionfamily lifeIndian parentsparental experiencesparent-child relationquality of lifestress/psychological

Identifiers

PMID40687531
PMCPMC12272665

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.