Trial reportWomen's health (London, England)
Women with endometriosis: Experiences with pain management and views on optimal healthcare through the concept of health literacy.
Trial report in Women's health (London, England). The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05091268 (Effect of Physical Activity and Pain Education on Endometriosis-associated Pain A Randomizes Controlled Trial With a Multimodal Interdisciplinary Group Approach), which is not on this map. Cited by 2 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Effect of Physical Activity and Pain Education on Endometriosis-associated Pain A Randomizes Controlled Trial With a Multimodal Interdisciplinary Group Approach
Who cites it
2 citing papers in PubMed.
- Bridging Clinical Care and Self-Management: Impact of Nursing Module Based on WHO's Universal Self-Care Framework in Women with Endometriosis.Healthcare (Basel, Switzerland) · 2026Article
- Yearning for movement. A qualitative interview study exploring physical activity in the context of endometriosis-associated chronic pain.Women's health (London, England)Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundEndometriosis is a chronic inflammatory disease, characterised by pain and potential fertility reduction, affecting 6%-10% of women. Pain management courses may promote self-care and enhance patient satisfaction. However, research into the experiences of participation in such courses are lacking.
objectivesThe study aims to describe the experiences of Norwegian women with endometriosis after pain management course and their view on optimal healthcare through organisational and individual health literacy.
designQualitative study as part of a randomised controlled trial (NCT05091268).
methodsSemi-structured individual in-depth interviews were conducted between August and November 2023 with 19 women diagnosed with endometriosis, recruited from two University hospitals specialising in endometriosis care, through a patient organisation and social media, after participation in a multidisciplinary pain management course.
resultsReflexive thematic analysis yielded two main themes: (1) Insightful experiences with individual health literacy and (2) frustrating experiences with organisational health literacy. Participants reported a positive shift in their ability to self-manage endometriosis following the pain management course, demonstrating a progression from passive to active participation in their own care. The participants also expressed a strong and recurring need for enhanced dissemination of information, including a need for post-diagnosis educational courses, highlighting a demand for ongoing, interactive support tailored to their condition.
conclusionA need emerges for improved dissemination of information, enhanced monitoring, and health expertise at an organisational level within the healthcare system. Thus, future health care services should aim to provide seamless, multidisciplinary treatment to improve patient satisfaction. REGISTRATION: Trial registry name: Effect of Physical Activity and Pain Education on Endometriosis-Associated Pain. REGISTRATION NUMBER: NCT05091268. URL: https://clinicaltrials.gov/study/NCT05091268.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.