Evidence map›Paper›PMID 40679749›Full record

ArticleJournal of autism and developmental disorders2025

Experiences of Autistic Individuals, Caregivers and Healthcare Providers with ABA-Derived Therapies: a Sequential Exploratory Mixed Methods Study.

Kim M Jonkman, Charlotte den Hartog, Bart Sloot, Sander Begeer, Elisa Back, Anke M Scheeren

Abstract read
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In one paragraph

Article in Journal of autism and developmental disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Kim M JonkmanDepartment of Clinical, Neuro and Developmental Psychology, Vrije Universiteit Amsterdam, and Amsterdam Public Health Research Institute, Amsterdam, The Netherlands. k.m.jonkman@vu.nl.ORCID http://orcid.org/0000-0002-7724-2951
Charlotte den HartogDepartment of Clinical, Neuro and Developmental Psychology, Vrije Universiteit Amsterdam, and Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.ORCID https://orcid.org/0009-0009-7165-0637
Bart SlootDepartment of Clinical, Neuro and Developmental Psychology, Vrije Universiteit Amsterdam, and Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.ORCID https://orcid.org/0009-0002-1125-8878
Sander BegeerDepartment of Clinical, Neuro and Developmental Psychology, Vrije Universiteit Amsterdam, and Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.ORCID https://orcid.org/0000-0002-0572-6893
Elisa BackDepartment of Psychology, Kingston University, London, UK.ORCID https://orcid.org/0000-0002-9568-9351
Anke M ScheerenDepartment of Clinical, Neuro and Developmental Psychology, Vrije Universiteit Amsterdam, and Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.ORCID https://orcid.org/0000-0001-7530-3354

Funding

Ministerie van Volksgezondheid, Welzijn en Sport 16-6028-33751
6 · The paper itself

Abstract

Applied Behavior Analysis (ABA) is a widely recommended intervention for autistic children, but it has recently been criticized because of its potential negative effects on mental health. This study aims to map experiences with ABA and related techniques in the Netherlands by investigating different types of ABA interventions, experiences and satisfaction levels, and explores variations across techniques and stakeholders. An exploratory sequential mixed methods design was employed, beginning with qualitative focus groups (n = 22) followed by a quantitative online survey (n = 219). Participants included autistic adults, parents/legal representatives, and healthcare professionals. Focus groups revealed six main themes: diverse interpretations of ABA, variations in its application, positive experiences, concerns about overburdening and psychological impacts, criticisms of the healthcare system, and quality control issues. Survey results indicated that satisfaction with ABA interventions varied, with autistic adults being less satisfied than parents and healthcare professionals. Positive outcomes included improved communication and independence, while negative experiences involved trauma and concerns about ethical application. Better quality interventions were associated with higher satisfaction levels. The study reveals diverse experiences and interpretations of ABA. Participants raised significant concerns that merit attention alongside the noted benefits of ABA. Improving training and ensuring ethical practices are crucial to maximize ABA's potential to positively impact the lives of autistic individuals. Future efforts should focus on enhancing regulation, standardization, and incorporating autistic perspectives to optimize outcomes.

Indexed as

ABAApplied behavior analysisAutismInterventionMixed methods

Identifiers

PMID40679749

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.