Evidence map›Paper›PMID 40678275›Full record

ArticleArchives of rehabilitation research and clinical translation2025

Reproductive Education and Sexual Abuse Among Individuals With Spina Bifida: A Mixed Methods Study.

Betsy Hopson, Molly Richardson, Caroline Caudill, Don Lein, Courtney Streur, Elizabeth Taylor, Suzannah Rogers, Victoria Jiminez, Brandon G Rocque, Jeffrey Blount and 2 more

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In one paragraph

Article in Archives of rehabilitation research and clinical translation, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Betsy HopsonDepartment of Medicine, University of Alabama at Birmingham, Birmingham, AL.
Molly RichardsonSchool of Public Health, Department of Health Organization and Policy, University of Alabama at Birmingham, Birmingham, AL.
Caroline CaudillDepartment of Neurosurgery, University of Alabama at Birmingham, Birmingham, AL.
Don LeinSchool of Physical Therapy, Department of Physical Therapy, University of Alabama at Birmingham, Birmingham, AL.
Courtney StreurPediatric Urology, University of Michigan, Ann Arbor, MI.
Elizabeth TaylorSchool of Public Health, Department of Health Organization and Policy, University of Alabama at Birmingham, Birmingham, AL.
Suzannah RogersHeersink School of Medicine, Department of Neurosurgery, University of Alabama at Birmingham, Birmingham, AL.
Victoria JiminezHeersink School of Medicine, Department of Neurosurgery, University of Alabama at Birmingham, Birmingham, AL.
Brandon G RocqueDepartment of Neurosurgery, University of Alabama at Birmingham, Birmingham, AL.
Jeffrey BlountDepartment of Neurosurgery, University of Alabama at Birmingham, Birmingham, AL.
David JosephDepartment of Urology, University of Alabama at Birmingham, Birmingham, AL.
Ching Man Carmen TongDepartment of Urology, University of Alabama at Birmingham, Birmingham, AL.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objective: To investigate sexual and reproductive health (SRH) knowledge and practices among young adults with spina bifida (SB), with an emphasis on identifying gaps in SRH literacy and barriers to care. Design: Sequential explanatory mixed methods study consisting of a disability-specific survey and follow-up interviews. Setting: Participants were recruited from a multidisciplinary SB clinic. Participants: Eighty young adults (N=80) with SB were surveyed (March 2021-April 2022), and 4 participants from this sample took part in follow-up in-depth qualitative interviews. The sample included both male and female participants who were sexually active or had prior exposure to SRH education. Interventions: Not applicable. Main Outcome Measures: Primary measures assessed SRH knowledge gaps, relationship barriers, contraception use, pregnancy awareness, and experiences of abuse/coercion. Findings aim to inform educational programs, abuse prevention, and clinical guidelines for individuals with SB. Results: Among the 80 survey participants, 55% of men and 47% of women reported being sexually active. Despite this, 44% of women were unsure about their ability to become pregnant. Sexual abuse or coercion was reported by 25% of women and 10% of men. Key interview themes included challenges and supports related to dating, gaps in SRH education, experiences with sexual intimacy, and the prevalence of sexual abuse. Barriers stemmed from concerns about disclosing SB, misconceptions about independent living, and restricted social opportunities because of family protectiveness. Facilitators included online dating, shared interests, and acceptance from open-minded partners. Conclusions: Among the young adults with SB who participated in this study, many were sexually active but faced significant barriers and gaps in SRH knowledge, increasing their risk of sexual abuse and poor reproductive health outcomes. Determining levels of sexual health literacy and screening for abuse are critical to improving SRH outcomes for this vulnerable population.

Indexed as

ContraceptionHealth disparitiesHealth literacyRehabilitationSexual abuse Mixed methodsSexual and reproductive healthSpina bifida

Identifiers

PMID40678275
PMCPMC12265902

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.