ArticleJournal of the National Cancer Institute. Monographs2025
Integration of sexual orientation and gender identity data into a comprehensive cancer center tumor registry: challenges and lessons learned.
Article in Journal of the National Cancer Institute. Monographs, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
2 citing papers in PubMed.
- Urological care for sexual and gender minorities: a narrative review toward equitable care.Current opinion in urology · 2026Review
- How to improve the cancer continuum for transgender and gender-diverse patients.JNCI cancer spectrum · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
backgroundSexual and gender minorities (SGM) experience health disparities across cancer care continuum. However, inconsistent sexual orientation and gender identity (SOGI) data collection precludes measurement of the burden, and points to intervene. Comprehensive cancer centers (CCC) and their network hospitals are integrating SOGI data collection in their electronic medical records (EMRs), but significant challenges and barriers remain in data completion.
methodsWe evaluated the completeness of SOGI data in EMRs between 2021 and 2023 for cancer registry patients from 3 of the 54 CCC network hospitals/clinics in western PA used descriptive and bivariate statistics to compare between those with completed data and those that did not.
resultsResults found 12% of patients with completed SOGI data with notable differences by sex-at-birth, urban/rural status, and age. SOGI data completion rates increased each year significantly but overall remained low.
conclusionStrong leadership, culturally sensitive education of clinical, research staff and patients, routine monitoring of SOGI data, and education of SGM on self-advocacy can address some of these gaps.
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Registered trials
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