Evidence map›Paper›PMID 40670044›Full record

SynthesisBMJ paediatrics open2025

Economic costs of health and social care for a child with a life-limiting condition in their last year of life: a systematic review.

Louise Prendergast, Ellie Crane, Nathan Bray, Jane Noyes

Abstract readSystematic Review
In one paragraph

Synthesis in BMJ paediatrics open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Louise PrendergastSchool of Health Sciences, Bangor University, Bangor, Gwynedd, UK.ORCID http://orcid.org/0000-0003-2516-1479
Ellie CraneSchool of Health Sciences, Bangor University, Bangor, Gwynedd, UK.ORCID http://orcid.org/0009-0004-1071-9921
Nathan BraySchool of Health Sciences, Bangor University, Bangor, Gwynedd, UK n.bray@bangor.ac.uk.ORCID http://orcid.org/0000-0001-7646-5435
Jane NoyesSchool of Health Sciences, Bangor University, Bangor, Gwynedd, UK.ORCID http://orcid.org/0000-0003-4238-5984

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimTo systematically review and descriptively synthesise the costs associated with any health and/or social care services provided to children with a life-limiting condition, in their last year of life.

methodsSystematic review using MEDLINE, EMBASE, CENTRAL Cochrane Library, CINAHL and other specialist databases to identify articles published between 2004 and 2024. Duplicates were removed and two authors screened the articles and abstracts independently. Full-text articles were assessed for eligibility, with quality assessment conducted using the Drummond checklist. The findings were exported into tables and summarised narratively. Costs from each study were calculated per person per month and inflated to 2024 US dollars.

results20 records were eligible for final inclusion. Services reported were varied as were approaches to estimating costs. In general, younger children required more intensive and higher cost care. Costs increase in the final months of life, and specialist paediatric palliative care interventions were associated with overall lower costs through reductions in hospital admissions and length of stay.

conclusionsIt was not possible to present a reliable robust estimate of the economic costs of services and resources due to limited and heterogenic data. Further research is needed to identify the full range of resources, and services associated with caring for children with life-limiting conditions in their last year of life, to support healthcare planning and resource allocation.

Indexed as

Health Care CostsPalliative CareSocial WorkTerminal CareChildChild, PreschoolHumansHealth services researchInfantPalliative Care

Identifiers

PMID40670044
PMCPMC12273097

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.