Observational studyMovement disorders clinical practice2025
Observed and Patient-Perceived Information Provision When Diagnosed With Parkinson's Disease.
Observational study in Movement disorders clinical practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Clinician Communication About Uncertainty During Parkinson Disease Diagnostic Consultations.Neurology. Clinical practice · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors.
Funding
Abstract
backgroundPeople with Parkinson's disease (PD) perceive to receive insufficient disease-specific information after diagnosis, whereas clinicians report providing all relevant information.
objectivesThe objectives were to examine the information actually provided by clinicians during diagnostic consultations and its relations with background characteristics, information needs, and the perception and evaluation of provided information.
methodsThis prospective observational longitudinal study combined data from questionnaires and recorded diagnostic consultations at 6 neurology outpatient clinics in the Netherlands. Recordings were systematically coded for duration and extensiveness of information regarding diagnosis, treatment, disease course, and information gathering. Patients and companions completed questionnaires assessing preferred and perceived amount of information, and satisfaction with information (all ranges 1 [low] to 5 [high]).
resultsTotal consultation time (N = 50 patients and N = 30 companions) was 48.0 ± 19.4 (mean ± SD) minutes of which 12 ± 7 minutes were dedicated to information provision. Most time was spent on the theme "treatment" (6.9 ± 4.3 minutes) and least on "disease course" (1.4 ± 1.7 minutes). Neither duration nor extensiveness of provided information was related to patients' generally high information preference (score 4.4 ± 0.7). Patients and their companions perceived a fair amount of information given (score 2.8 ± 0.9) and were quite satisfied (score 3.4 ± 0.9). Nonetheless, one-third of patients expressed a desire for more information, specifically concerning the course of PD.
conclusionDuring diagnostic consultations for PD, clinicians primarily focused on treatment-related information. Although patients were generally satisfied, information needs concerning the implications of PD for their future lives were not met for all patients.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.