Evidence map›Paper›PMID 40665407›Full record

ArticleBMC research notes2025

Burden level and quality of life of caregivers of hemodialysis patient's in central India: a mixed-method cross-sectional study.

Senthilkumar Ramasamy, Vinay Rathore, Varun Agrawal, Abhiruchi Galhotra

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Article in BMC research notes, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

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5citing papers in PubMed
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1 · What the graph read from it

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3 · Its place in the literature

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5 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

4 authors.

Senthilkumar RamasamySchool of Public Health (at time of study), All India Institute of Medical Sciences, Raipur, Chhattisgarh, India.ORCID http://orcid.org/0000-0002-4896-4576
Vinay RathoreDepartment of Nephrology, All India Institute of Medical Sciences, Raipur, Chhattisgarh, India.ORCID http://orcid.org/0000-0003-4315-5072
Varun AgrawalDepartment of Nephrology, Dau Kalyan Singh Post Graduate Institute and Research center, Raipur, Chhattisgarh, India.ORCID http://orcid.org/0009-0007-5301-7163
Abhiruchi GalhotraDepartment of Community & Family Medicine, All India Institute of Medical Sciences, Raipur, Chhattisgarh, India. abhiruchigalhotra@aiimsraipur.edu.in.ORCID http://orcid.org/0000-0001-6169-8527

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeCaregivers of hemodialysis patients are at high risk of developing reduced quality of life (QoL) and increased caregiver burden.

aimThis study aims to explore the level of caregiver burden and quality of life in caregivers of hemodialysis patients in central India.

methodsThis cross-sectional mixed-method study was undertaken among caregivers of stable hemodialysis patients attending a tertiary care hospital in central India. The Zarit Burden Interview (ZBI) and WHOQoL BREF questionnaire measured caregiver burden and QoL. The qualitative data was gathered through in-depth interviews using a semi-structured open-ended questionnaire that delved into their personal experiences with caregiving. The transcripts of these interviews were analysed using applied thematic analysis, allowing for the identification and exploration of recurring themes and patterns within the data.

resultsA total of 105 caregivers took part in this study, with a mean age of 40.04 ± 12.96 years. 56 (53.3%) caregivers were female. Most (48.6%, n = 51) were spouses/partners. Ten caregivers (9.5%) had to change their occupations due to caregiving responsibilities. 14 (23.33%) had comorbidities (diabetes, hypertension, asthma, and arthritis) themselves. The mean caregiver burden level (ZBI) was 18.55 ± 7.58. Most (59.0%) experienced mild to moderate burden, while 28.6% reported a high burden. The WHOQoL BREF mean score of various domains of physical health, psychological, social relationship and environmental was 35.70 ± 12.14, 44.20 ± 13.28, 44.28 ± 15.10 and 40.07 ± 13.36 respectively. The thematic analysis revealed, difficulty in continuing education and employment, changing jobs, the need to travel long distances to reach dialysis facilities and hardship due to COVID-19 pandemic as recurring challenges among caregivers.

conclusionCaregivers of Hemodialysis patients had significant caregiver burden and poor QoL. Regular assessment and special attention are needed for these caregivers.

Indexed as

Caregiver BurdenCaregiversCost of IllnessQuality of LifeRenal DialysisAdultCross-Sectional StudiesFemaleHumansIndiaMaleMiddle AgedSurveys and QuestionnairesCaregiver burdenHemodialysisWHOQoL BREFZarit burden interview

Identifiers

PMID40665407
PMCPMC12261659

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.