ArticleInternational journal for equity in health2025
Engaging underrepresented populations in public health monitoring: strategies for people with mild intellectual disability or low literacy skills.
Article in International journal for equity in health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
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Who cites it
2 citing papers in PubMed.
- Developing a Core Outcome Set for the Evaluation of Remote Patient Monitoring Interventions Using the Sextuple Aim: Modified Delphi Study.Journal of medical Internet research · 2026Article
- Enhancing Participation in Alzheimer's Research: A Comparative Study of Community Health Worker -Led and Digital Recruitment Strategies in Hispanic/Latino Communities.Journal of racial and ethnic health disparities · 2026Article
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Authors and funding
6 authors.
Funding
Abstract
backgroundRecruitment challenges, the use of complex language, and reluctance toward research are factors that make people with low literacy skills (LL skills), such as people with mild intellectual disability (MID), an underrepresented group in public health monitoring questionnaires. As a result, little is known about the health status and needs of people with MID and/or LL skills, despite their higher health risks and greater support needs, reinforcing health inequalities. Therefore, this case study evaluates the development and implementation of an accessible online COVID-19 health monitoring survey (CHM) to gain insights into what is needed to engage these subpopulations in public health monitoring and promote equitable participation.
methodsThe CHM project was systematically analyzed using 319 documents related to the CHM development and implementation process. A semi-structured coding approach was used to identify strategies used to reach the target groups and elements influencing accessibility of the monitoring survey.
resultsThree key strategies to reach people with MID and/or LL skills were identified: stakeholder involvement, emphasizing the benefits of participation, and reducing barriers and reluctance to participate. Additionally, the inclusive development process played an essential role in improving accessibility and led to content, cognitive, and usability adjustments.
conclusionsOur study illustrates that engaging people with MID and/or LL skills in public health monitoring relies on committed stakeholders who facilitate access to these groups and the involvement of experts by experience and co-researchers to align the monitoring survey with their experiences and abilities. These tailored methods and innovative recruitment strategies offer an opportunity for accessible and representative public health monitoring. Sustaining such monitoring approach could inform health policies that better reflect the needs of underrepresented groups and promote health equity.
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