Evidence map›Paper›PMID 40657880›Full record

ArticleRevista da Escola de Enfermagem da U S P2025

Social support for family caregivers of children and youth with special health care needs for home care: a scoping review.

Mariane Caetano Sulino-Gonçalves, Regina Aparecida Garcia de Lima, Fabrine Aguilar Jardim, Aline Cristiane Cavicchioli Okido, Larissa Karoline Dias da Silva Cassemiro, Lucila Castanheira Nascimento, Carmen Jerez-Molina, Edmara Bazoni Soares Maia, Elsa Maria de Oliveira Pinheiro de Melo, Luís Carlos Lopes-Júnior

Abstract readScoping Review
In one paragraph

Article in Revista da Escola de Enfermagem da U S P, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Caregiver burden in children with medical complexity: an approach based on the identification of associated factors.Revista paulista de pediatria : orgao oficial da Sociedade de Pediatria de Sao Paulo · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Mariane Caetano Sulino-GonçalvesUniversidade de São Paulo, Escola de Enfermagem de Ribeirão Preto, Ribeirão Preto, SP, Brazil.ORCID 0000-0003-0483-8620
Regina Aparecida Garcia de LimaUniversidade de São Paulo, Escola de Enfermagem de Ribeirão Preto, Ribeirão Preto, SP, Brazil.ORCID 0000-0002-0611-5621
Fabrine Aguilar JardimUniversidade de São Paulo, Escola de Enfermagem de Ribeirão Preto, Ribeirão Preto, SP, Brazil.ORCID 0000-0002-0798-5987
Aline Cristiane Cavicchioli OkidoUniversidade de São Paulo, Escola de Enfermagem de Ribeirão Preto, Ribeirão Preto, SP, Brazil.ORCID 0000-0003-4309-5612
Larissa Karoline Dias da Silva CassemiroUniversidade de São Paulo, Escola de Enfermagem de Ribeirão Preto, Ribeirão Preto, SP, Brazil.ORCID 0000-0001-6825-8022
Lucila Castanheira NascimentoUniversidade de São Paulo, Escola de Enfermagem de Ribeirão Preto, Ribeirão Preto, SP, Brazil.ORCID 0000-0002-7900-7111
Carmen Jerez-MolinaUniversitat de Vic - Universitat Central de Catalunya, Campus Docent Sant Joan de Déu, Barcelona, Spain.ORCID 0000-0003-2402-6785
Edmara Bazoni Soares MaiaUniversidade Federal de São Paulo, Departamento de Enfermagem. São Paulo, SP, Brazil.ORCID 0000-0003-2996-6936
Elsa Maria de Oliveira Pinheiro de MeloUniversidade de Aveiro, Escola Superior de Saúde, Aveiro, Portugal.ORCID 0000-0003-0530-2895
Luís Carlos Lopes-JúniorUniversidade Federal do Espírito Santo, Departamento de Enfermagem, Vitoria, ES, Brazil.ORCID 0000-0002-2424-6510

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo map and synthesize evidence related to the types and strategies of social support used by family caregivers of children and youth with special health care needs to ensure the continuity of home care.

methodThis scoping review was conducted in accordance with the JBI methodology guidelines for Evidence Synthesis and reported following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR). Eight databases were used: Cochrane Library, Embase, MEDLINE/PubMed, CINAHL, SCOPUS, Web of Science, PsycINFO and LILACS, as well as additional sources and reference lists of the included studies.

resultsTwenty-two studies were included, presenting social support in two dimensions: informal and formal. The support strategies identified comprised groups of parents whose children share similar care needs, online parent forums, financial assistance, prayers, support from religious institutions, and temporary caregivers. Among the gaps that impact the continuity of home care are the lack of information about rights and benefits, as well as insufficient psychological support for family caregivers.

conclusionThe mapped studies showed how important a competent and structured social support network is in the lives of family caregivers, serving as an essential resource for the continuity of home care.

Indexed as

CaregiversChildren with DisabilitiesHome Care ServicesSocial SupportAdolescentChildHealth Services Needs and DemandHumans

Identifiers

PMID40657880
PMCPMC12258054

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.