ArticleRevista da Escola de Enfermagem da U S P2025
Cultural modulation of family care for technology-dependent children: an ethnographic study.
Article in Revista da Escola de Enfermagem da U S P, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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6 authors.
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Abstract
objectiveTo interpret the cultural modulation of family care for technology-dependent children in different contexts.
methodEthnographic study with technology-dependent children, their families and people they live with, totaling 15 informants. Data collection took place from June/2019 to June/2020 in a municipality in southern Brazil, through participant observation, ethnographic interview, field diary, genogram, and ecomap. For the interpretation, the phases proposed by ethno-nursing were followed.
resultsFamilies adapt and restructure based on their children's needs. They use strategies that include adjustments to the physical environment, changes of residence, and constant efforts to ensure continuity of treatment. They depend on support from people outside the family nucleus, including schools and health services, to ensure care. Mothers are the primary caregivers while fathers act as providers. The school inclusion of children and the lack of listening were also highlighted as challenges.
conclusionFamilies need to make cultural adjustments to overcome the challenges of care and improve the quality of life of technology-dependent children.
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