ArticleAmerican journal of Alzheimer's disease and other dementias
Traditional and Non-traditional Caregivers Define "Family" and Caregiving Obligations.
Article in American journal of Alzheimer's disease and other dementias. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
3 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Understanding how informal dementia caregiver networks are assessed in the literature: results from a scoping review.Frontiers in dementia · 2026Pooled it
- The sociological stakes of attitudes toward the families and care of older adults with dementia.Sociological forum (Randolph, N.J.) · 2026Article
- Beliefs about Levels of Care Responsibility for Older Adults in Need: Differences by Relationship and the Presence of Dementia.Alzheimer's & dementia. Behavior & socioeconomics of aging · 2026Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
Narrow definitions of family can constrain survey items about obligations regarding who should care for older adults. Current measurement often does not account for the increased prevalence of diverse family forms and support received among older adults. We draw on six focus groups (N = 33) of family or friends caring for older adults with trouble remembering, memory issues, or dementia to explore definitions of family, caregiving, and responsibility. Although many caregivers immediately default to traditional definitions, the breadth of "family" seen as responsible and actual care networks are often broader. In many cases, caregivers considered friends and other non-kin as family because they provided care. Furthermore, both care and obligations are shaped by family dynamics and the older adult's memory loss. Results suggest that survey measures should capture a wider range of relationship ties and dynamics to better understand family, caregiving obligations, and the tensions between them.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.