ArticleJournal of nephrology2025
Supporting people with chronic kidney disease to self-manage their condition: understanding the lived experiences, needs and requirements, and barriers and facilitators.
Article in Journal of nephrology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed.
- Use, Usability, and Experience Testing of a Digital Health Intervention to Support Chronic Kidney Disease Self-Management: Mixed Methods Study.Journal of medical Internet research · 2025Trial
- Development and Psychometric Testing of the Patient Safety Scale for Home Peritoneal Dialysis (PD-PSS).Japan journal of nursing science : JJNS · 2026Article
- Randomized clinical trial of the KH4L self-management program.Clinical kidney journal · 2026Article
- Self-Management Intentions and Behaviors Among CKD Patients at Predialysis and Dialysis Stages: A Cross-Sectional Study Based on Protection Motivation Theory.Nursing research and practice · 2026Article
- Lived experiences and decision making among patients and caregivers choosing conservative kidney management: A qualitative study.Palliative care and social practice · 2026Article
- Topic Modeling of Nursing Documentation in Hemodialysis Units: A Mixed-Methods Study of Nursing Surveillance Activities.Journal of nursing management · 2026Observational
- A Psychometric Network Analysis of Fear of Progression, Coping Styles, and Self-Management Among Patients Undergoing Continuous Ambulatory Peritoneal Dialysis.Psychology research and behavior management · 2026Article
- The role of social networks in supporting self-management in CKD: a narrative synthesis.BMC nephrology · 2025Review
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSelf-management has been identified as an essential component in the effective management of patients with chronic kidney disease (CKD). To effectively develop interventions that support patients with CKD to self-manage, it is crucial to understand their experiences and the factors that may influence their ability to self-manage. This study explored awareness, attitudes and participation with self-management in people living with non-dialysis CKD to understand factors influencing self-management behaviours.
methodsSemi-structured interviews were conducted with 22 individuals living with non-dialysis CKD. Topics explored included perspectives and experiences of self-management, health and lifestyle behaviours, healthcare professional support, and self-management support, including future interventional approaches. Data were audio recorded and transcribed verbatim. Thematic analysis was used to analyse the data and to identify and report themes.
resultsSix themes were identified encompassing perspectives, barriers and facilitators of self-management: "perceptions and experiences of (self-)managing CKD", "perceived needs and requirements for self-management education and support", "knowledge and capability-related factors", "skills and opportunity-related factors", "confidence and motivational-related factors" and "social support".
conclusionParticipants perceived that their CKD was not a significant problem, given the lack of concern from their doctor. Despite reporting a lack of awareness and understanding of CKD and its management, participants expressed interest in learning more and implementing appropriate self-management strategies. It was perceived that information and support were provided when it was almost too late, and not when it could potentially have the greatest impact. Perceived barriers and facilitators must be considered when developing interventions to support self-management for people with CKD.
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