Evidence map›Paper›PMID 40644398›Full record

ArticlePloS one2025

"It's wishy-washy [...] You are getting this diagnosis because we've ruled out everything else:" Developmental language disorder (DLD) diagnosis in the Republic of Ireland: A qualitative exploration of the perspectives of parents and clinicians.

Sylwia Kazmierczak-Murray, Neil Kenny, Suzanne Carolan, Alison Doyle

Abstract read
In one paragraph

Article in PloS one, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Sylwia Kazmierczak-MurrayInstitute of Education, Dublin City University, Ireland.ORCID https://orcid.org/0000-0002-1629-5566
Neil KennyInstitute of Education, Dublin City University, Ireland.
Suzanne CarolanLouth Primary Care, Health Service Executive, Ireland.
Alison DoyleCaerus Education, Ireland.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Developmental Language Disorder (DLD) affects around 7% of children globally, yet the scholarship on it is significantly underdeveloped. Emerging research suggests that DLD is both underdiagnosed by clinicians and misunderstood by parents. This study explores the perspectives of both clinicians and parents regarding their experiences of the process of giving and receiving a DLD diagnosis in the Republic of Ireland. Semi-structured qualitative group interviews were conducted with 15 parents and seven clinicians. The data were analysed using a reflexive, thematic analysis. Four themes were identified: "challenges of giving a DLD diagnosis", "communicating a DLD diagnosis", "utility of DLD diagnosis for children and families" and "going forward and recommendations". Clinicians reported systemic barriers in the healthcare system, including limited therapy time, long waitlists, and staff turnover, as major challenges in diagnosing DLD. Many expressed a lack of confidence in providing a diagnosis without multidisciplinary support which would support them in 'ruling out' other neurodevelopmental differences. Communicating the diagnosis was often inconsistent, with many parents feeling unsupported and uninformed about the nature and impact of DLD. Parents felt inadequate at being left with communicating the diagnosis of DLD and its impact to their children. The participants emphasised urgent need for greater awareness, teacher and clinical education, post-diagnosis support, and increased national advocacy in relation to DLD in Ireland. Both clinicians and parents saw DLD diagnosis as essential for accessing therapeutic and educational support, yet it was the access to these supports that seemed to influence the diagnostic decisions. Importantly, our research documents clinicians' fear of getting the "right" condition for diagnosis, which may be firstly at odds with the individual profiles of children, and secondly, acts as a barrier in accessing the needed support. In light of growing awareness of the co-occurrence of neurodevelopmental differences, we call for enhanced support for clinicians to build their confidence in navigating the evolving diagnostic criteria of DLD.

Indexed as

Health PersonnelLanguage Development DisordersParentsAdultChildChild, PreschoolFemaleHumansIrelandMaleQualitative Research

Identifiers

PMID40644398
PMCPMC12250196

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.