Evidence map›Paper›PMID 40641440›Full record

ArticleJournal of primary care & community health

"Those Gray Areas of Healthcare": Primary Care Perspectives of Obstacles that Influence Decision Making with Families of African American Persons Living with Dementia.

Kalisha Bonds Johnson, Gaea Daniel, Molly Campbell, Kaylah Hernandez, Karah Alexander, Kenneth Hepburn, Jordan Wurapa, Karin Small Wurapa, Kimesha Grant, Aisha Ellis and 2 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of primary care & community health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Kalisha Bonds JohnsonNell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA, USA.ORCID 0000-0003-2434-6092
Gaea DanielNell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA, USA.
Molly CampbellSchool of Nursing, Linfield University, Portland, OR, USA.
Kaylah HernandezNell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA, USA.
Karah AlexanderNell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA, USA.
Kenneth HepburnNell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA, USA.
Jordan WurapaDepartment of Physiology and Biophysics, School of Medicine, Case Western Reserve University, Cleveland, OH, USA.
Karin Small WurapaPath 2 HEALthy, Gahanna, OH, USA.
Kimesha GrantSchool of Nursing, Johns Hopkins University, Baltimore, MD, USA.
Aisha EllisSchool of Nursing, Johns Hopkins University, Baltimore, MD, USA.
LaShanna BraswellEmory Rehabilitation Hospital, Emory Healthcare, Atlanta, GA, USA.
Theodore M JohnsonNell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA, USA.

Funding

Testing Tele-Savvy, an On-line Psychoeducation Program for Informal Alzheimer's CaregiversR01AG054079 · NIA · EMORY UNIVERSITY · PI GRIFFITHS, PATRICIA C., HEPBURN, KEN W · 2016 to 2019
$3.4M
Designing a Culturally Tailored Formal Care Decision-Making Intervention for African American Dementia Dyads and FamiliesK23AG073516 · NIA · EMORY UNIVERSITY · PI JOHNSON, KALISHA BONDS · 2021 to 2025
$787k
Academic Leadership Career AwardK07AG076616 · NIA · UNIVERSITY OF MINNESOTA · PI JOSEPH E. GAUGLER · 2023 to 2026
$562k
HRSA HHS 1U1QHP53036NIA NIH HHS K07 AG076616NIA NIH HHS K23 AG073516NIA NIH HHS R01 AG054079
6 · The paper itself

Abstract

INTRODUCTION/

objectivesAfrican American persons living with Alzheimer's disease and related dementias (ADRD) experience health disparities in health care decision making. This study's objective is to understand what influences health care decision making for African American persons living with ADRD from the perspectives of primary care providers and care team members.

methodsTwenty primary care providers and care team members completed semi-structured interviews to identify barriers associated with their involvement in health care decision making for African American persons living with ADRD. The interviews were analyzed with directed content analysis. RESULTS AND

conclusionThree themes were identified: Systemic Healthcare Obstacles; Relational Healthcare Obstacles; and Individual Health Care Obstacles. The themes diverged to yield 9 categories (Inability to See/Hesitancy to Address Racism; Care Coordination at End of Life; Perceived Lack of Trust; Inadequate Answers and Connections; Uncertainty with Decision Making; Racial and Ethnic Identity; Lived Experiences; Definition of a Good Decision; and Hurt Feelings) and 2 subcategories (Cultural Miscommunication and Time to Build Mutual Understanding). To effectively support decision making processes for African American persons living with ADRD, there is a need to equip primary care providers and care team members with means to identify and address obstacles at multiple levels.

Indexed as

Alzheimer DiseaseBlack or African AmericanDecision MakingDementiaPrimary Health CareAgedFemaleHealthcare DisparitiesHumansInterviews as TopicMaleMiddle AgedQualitative ResearchRacismbarriersfrontlinehealthcare disparitiesnursenurse practitionerprimary care providersocial worker

Identifiers

PMID40641440
PMCPMC12254628

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.