Evidence map›Paper›PMID 40639819›Full record

ArticleJournal of applied research in intellectual disabilities : JARID2025

Using Supporters to Increase Participation in Qualitative Research Interviews by People With Intellectual Disabilities.

Sarah A Hall, Roger J Stancliffe, Lynda Lahti Anderson

Abstract read
In one paragraph

Article in Journal of applied research in intellectual disabilities : JARID, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Sarah A HallInstitute on Community Integration, University of Minnesota, Minneapolis, Minnesota, USA.ORCID https://orcid.org/0000-0002-2857-8192
Roger J StancliffeInstitute on Community Integration, University of Minnesota, Minneapolis, Minnesota, USA.ORCID https://orcid.org/0000-0003-4265-7433
Lynda Lahti AndersonInstitute on Community Integration, University of Minnesota, Minneapolis, Minnesota, USA.ORCID https://orcid.org/0000-0002-1986-3506

Funding

Department of Health and Human Services, Administration For Community Living, Rehabilitation Research and Training Center (RRTC) on Community Living and Participation Among People with Intellectual and Developmental Disabilities, National Institute on Disability, Independent Living, and Rehabilitation Research 90RTCP0011-03-00
6 · The paper itself

Abstract

backgroundResearchers need to hear directly from individuals with intellectual disabilities to better understand their experiences and perspectives. However, much inclusive research uses interviews and focuses mainly on people with greater communication skills. One priority is to expand the research techniques used to be more inclusive of people with higher support needs.

methodQualitative analysis of interview transcripts identified themes related to a support person's roles in assisting individuals' interview participation. Quantitative analysis identified factors related to the co-creation of responses, including turn-taking.

resultsSupporters helped participants to convey knowledge about the individuals' experiences. They provided encouragement and informational support. Supporters helped explain interview questions and co-create answers. These supporters played a supportive role and did not overpower or silence the responses of research participants.

conclusionsIncluding supporters chosen by research participants with intellectual disabilities as a support person during qualitative research interviews may be an effective tool in inclusive research.

Indexed as

Intellectual DisabilityInterviews as TopicPersons with Intellectual DisabilitiesQualitative ResearchAdultFemaleHumansMaleMiddle Agedalliesinclusive researchintellectual disabilityinterviewmethodologyqualitative research

Identifiers

PMID40639819
PMCPMC12245490

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.