Evidence map›Paper›PMID 40639315›Full record

ArticleThe Journal of surgical research2025

Measurement of Long-Term, Quality of Life Outcomes in Injury Databases.

Alexander J Ordoobadi, Kimberly K Greenberg, Saba Ilkhani, Isaac G Alty, Kiana R Winslow, Lili B Steel, Radzi Hamzah, Jeffrey C Schneider, Juan P Herrera-Escobar, Geoffrey A Anderson

Abstract read
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Article in The Journal of surgical research, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

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PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Alexander J OrdoobadiDepartment of Surgery, Brigham and Women's Hospital, Boston, Massachusetts; Center for Surgery and Public Health, Brigham and Women's Hospital, Boston, Massachusetts.
Kimberly K GreenbergSpaulding Rehabilitation, Boston, Massachusetts.
Saba IlkhaniCenter for Surgery and Public Health, Brigham and Women's Hospital, Boston, Massachusetts.
Isaac G AltyDepartment of Surgery, Brigham and Women's Hospital, Boston, Massachusetts; Center for Surgery and Public Health, Brigham and Women's Hospital, Boston, Massachusetts; Program in Global Surgery and Social Change, Harvard Medical School, Boston, Massachusetts.
Kiana R WinslowProgram in Global Surgery and Social Change, Harvard Medical School, Boston, Massachusetts.
Lili B SteelProgram in Global Surgery and Social Change, Harvard Medical School, Boston, Massachusetts.
Radzi HamzahProgram in Global Surgery and Social Change, Harvard Medical School, Boston, Massachusetts.
Jeffrey C SchneiderSpaulding Rehabilitation, Boston, Massachusetts; Department of Physical Medicine and Rehabilitation, Harvard Medical School, Boston, Massachusetts.
Juan P Herrera-EscobarCenter for Surgery and Public Health, Brigham and Women's Hospital, Boston, Massachusetts.
Geoffrey A AndersonDepartment of Surgery, Brigham and Women's Hospital, Boston, Massachusetts; Center for Surgery and Public Health, Brigham and Women's Hospital, Boston, Massachusetts; Program in Global Surgery and Social Change, Harvard Medical School, Boston, Massachusetts. Electronic address: ganderson@bwh.harvard.edu.

Funding

ACL HHS 90DPBU0008
6 · The paper itself

Abstract

introductionTraumatic injuries affect patients' long-term quality of life (QOL). In 2016, the National Academies highlighted the need to record long-term QOL outcomes within trauma databases. We studied national injury-specific databases to assess whether they capture QOL outcomes, and their key determinants, across the entire continuum of trauma care.

methodsWe coded variables in the Trauma Quality Program (TQP), Burn Care Quality Platform, and the Burn, Spinal Cord Injury (SCI), Traumatic Brain Injury (TBI) Model Systems databases to identify QOL and social determinants of health (SDOH) measures. We also calculated the proportion of variables collected across distinct phases of care (e.g., prehospital care, hospital care, rehabilitation care).

resultsThe databases ranged from 127 variables for Burn Care Quality Platform to 995 variables for SCI Model System. TQP collected data on prehospital, emergency department, and hospital care but did not collect outcomes after hospital discharge or measure QOL outcomes. In contrast, Model Systems databases captured information about long-term outcomes, including QOL information (Burn: 289 variables [33% of total variables]; TBI: 159 variables [25%], SCI: 115 variables [12%]). All databases measured SDOH, ranging from 12 variables (3%) in TQP to 67 variables (8%) in Burn Model System. Economic stability was the most frequently measured SDOH domain.

conclusionsDespite the recognized need to measure and address QOL factors post-injury, there currently is no standardized system for capturing these long-term outcomes, except for patients enrolled in the SCI, TBI, and Burn Model System programs. The trauma community needs a national system to track long-term QOL outcomes in trauma survivors.

Indexed as

Databases, FactualQuality of LifeWounds and InjuriesBrain Injuries, TraumaticHumansSocial Determinants of HealthUnited StatesLong-term outcomesPatient-reported outcome measuresQuality of life outcomesSocial determinants of healthTrauma survivorship

Identifiers

PMID40639315
PMCPMC12292006

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.