ArticleTechnology and health care : official journal of the European Society for Engineering and Medicine2025
Development of a technology-enhanced patient-reported outcome evaluation system for inflammatory bowel disease: A multidimensional approach to assessing survival quality.
Article in Technology and health care : official journal of the European Society for Engineering and Medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It carries an expression of concern. Not yet cited in PubMed.
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Abstract
BackgroundInflammatory Bowel Disease (IBD) significantly affects patients' long-term health and survival quality. Accurate and technology-driven assessment tools are essential for monitoring disease impact and optimizing individualized treatment strategies.ObjectiveTo develop a standardized and technology-enhanced evaluation system for IBD based on patient-reported outcomes (IBDPRO), enabling a comprehensive and dynamic assessment of patients' survival quality.MethodsA multidimensional evaluation system was constructed using the three-dimensional quality structure model. The framework incorporated expert consensus through the Delphi method, semi-structured interviews, and analytic hierarchy process (AHP) for weight assignment. A digital platform based on the REDCap system was used for data collection and patient follow-up. Statistical correlations were analyzed between survival quality scores and disease activity indices (PMS and HBI), as well as subjective self-assessments.ResultsHigh expert authority coefficients (0.926, 0.931) and significant agreement levels (Kendall's W = 0.226, 0.239, P < 0.01) were achieved. survival quality was strongly negatively correlated with disease activity (Spearman's r = -0.76, P < 0.001) and positively correlated with patients' self-perceived condition changes (r = 0.79, P < 0.001). The system demonstrated reliability, validity, and responsiveness across multiple dimensions.ConclusionsThe IBDPRO system provides a scientifically rigorous and technologically integrated method for evaluating the survival quality in IBD patients. This approach facilitates data-driven clinical decision-making and supports a transition toward personalized, patient-centered healthcare.
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