Evidence map›Paper›PMID 40633553›Full record

ArticleEuropean journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie2025

Evaluating the Empowerment Potential of an International Sexual Support Website for Patients with Anorectal Malformations and Hirschsprung Disease, their Parents and Healthcare Providers.

Olivia K C Spivack, Irene K Schokker-van Linschoten, Marjolein Spoel, Annette Lemli, Dalia Aminoff, Mikko Pakarinen, Ivo de Blaauw, Hanneke Ijsselstijn, Violet Petit-Steeghs

Abstract read
In one paragraph

Article in European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Olivia K C SpivackDepartment of Pediatric Surgery, Erasmus MC Sophia Children's Hospital, Rotterdam, the Netherlands.ORCID 0000-0002-8627-1383
Irene K Schokker-van LinschotenDepartment of Pediatric Surgery, Erasmus MC Sophia Children's Hospital, Rotterdam, the Netherlands.
Marjolein SpoelDepartment of Pediatric Surgery, Erasmus MC Sophia Children's Hospital, Rotterdam, the Netherlands.
Annette LemliSoMA e.V. - Selbsthilfeorganisation für Menschen mit Anorektalfehlbildungen und Morbus Hirschsprung - German Patient Organization for Anorectal Malformations and Hirschsprung disease, Munich, Germany.
Dalia AminoffAIMAR - Associazione Italiana Malformazioni Anorettali - OdV - Italian Patient Organization for Anorectal Malformations, Rome, Italy.
Mikko PakarinenDepartment of Pediatric Surgery, New Children's Hospital, University of Helsinki and Helsinki University Hospital, Pediatric Liver and Gut Research Group, Helsinki, Finland.
Ivo de BlaauwDivision of Pediatric Surgery, Department of Surgery, Radboudumc-Amalia Children's Hospital, Nijmegen, the Netherlands.ORCID 0000-0002-3995-7286
Hanneke IjsselstijnDepartment of Pediatric Surgery, Erasmus MC Sophia Children's Hospital, Rotterdam, the Netherlands.
Violet Petit-SteeghsErasmus School of Health Policy and Management, Erasmus University Rotterdam, Rotterdam, the Netherlands.

Funding

European Commission - 3rd Health Programme 2014-2020 847139European Commission - EU4Health Programme 2021-2027 101085522
6 · The paper itself

Abstract

Research indicates that the sexual support needs of patients with anorectal malformations (ARM) and Hirschsprung disease (HD) are often not addressed by patients, parents, and healthcare professionals (HPs) in their interactions. An international support website was developed to empower stakeholders, by addressing identified barriers. This study aimed to explore the empowerment potential of this disease-specific tool.Two online surveys were disseminated between May 1 and October 1, 2023; one for HPs and another for patients/parents. The surveys sought to assess and understand the website's expected empowerment effect. Empowerment was conceptualized using patient/professional empowerment models. Data were descriptively analyzed.A total of 12 patients (ARM,

Indexed as

Anorectal MalformationsEmpowermentHealth PersonnelHirschsprung DiseaseInternetParentsAdultFemaleHumansMaleSurveys and Questionnaires

Identifiers

PMID40633553
PMCPMC12611478

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.