Evidence map›Paper›PMID 40630766›Full record

ArticleSurgical oncology insight2025

Unseen burden: Exploring caregiver experiences, barriers, and facilitators in foregut cancer care.

Ioannis Liapis, Jaspinder Sanghera, Michelle Holland, Ivan Herbey, Katie West, Martin J Heslin, Krista Mehari, Larry Hearld, Smita Bhatia, Annabelle L Fonseca

Abstract read
In one paragraph

Article in Surgical oncology insight, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Ioannis LiapisUniversity of Alabama at Birmingham, Department of Surgery, USA.
Jaspinder SangheraUniversity of Alabama at Birmingham, Department of Surgery, USA.
Michelle HollandUniversity of Alabama at Birmingham, Department of Surgery, USA.
Ivan HerbeyUniversity of Alabama at Birmingham, School of Nursing, USA.
Katie WestRice University, Department of Biosciences, USA.
Martin J HeslinUniversity of Alabama at Birmingham, Department of Surgery, USA.
Krista MehariVanderbilt University, Department of Psychology, USA.
Larry HearldUniversity of Alabama at Birmingham, Health Services Administration, USA.
Smita BhatiaUniversity of Alabama at Birmingham, Institute of Cancer Outcomes and Survivorship, USA.
Annabelle L FonsecaUniversity of Alabama at Birmingham, Department of Surgery, USA.

Funding

Using Modifiable Factors to Predict Risk of non-Guideline Concordant Treatment in Foregut Cancers: A Novel Implementation Science-based approachK23MD018383 · NIMHD · UNIVERSITY OF SOUTH ALABAMA · PI Annabelle L Fonseca · 2023 to 2026
$647k
NIMHD NIH HHS K23 MD018383
6 · The paper itself

Abstract

Introduction: Caregivers play a pivotal role in supporting foregut cancer patients, yet their experiences and the challenges they face are overlooked. Understanding caregivers' experiences and the barriers and facilitators they encounter can inform interventions to improve their well-being and, ultimately, patient outcomes. This study focuses on the lived experiences and the interpersonal factors that shape the caregivers' journeys. Methods: Semi-structured interviews were conducted with caregivers of patients with foregut cancer receiving treatment at a safety-net hospital in the Deep South. Interviews were recorded, transcribed and qualitatively analyzed using NVivo 14 software. Grounded theory methodology was used to guide analysis. Three co-authors independently coded the data, with intercoder agreement of above 90 %. Results: Of the 15 caregivers interviewed, the majority were female, spouses of the patients, and resided in areas of high socioeconomic deprivation. Three theme categories emerged: caregiver experiences, individual/interpersonal level barriers, and individual/interpersonal level facilitators. Caregivers expressed self-sacrifice and a strong sense of duty, describing caregiving as a priority despite personal hardships. Barriers included psychological distress, financial strain, competing responsibilities, transportation challenges, social isolation, and patient denial. Conversely, facilitators included support from family and friends, religious and spiritual practices, and engagement in support groups. Conclusion: Caregivers of patients with foregut cancer face significant psychological and financial burden, compounded by competing responsibilities and limited social support. Interventions aimed at reducing caregiver burden and enhancing support mechanisms will improve both caregiver well-being and patient outcomes. Future research should focus on strategies that promote these facilitators and address barriers to caregiving.

Indexed as

CaregiversForegut CancerQualitativeSocial Determinants of HealthSouth

Identifiers

PMID40630766
PMCPMC12237423

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.