ArticleScientific reports2025
Defining informal caregivers by their characteristics safety roles and training needs in Europe.
Article in Scientific reports, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- When informal caregivers become double victims: Development of a multilevel conceptual framework for safer home care.International journal of nursing studies advances · 2026Review
- Consensus-Based Safety Recommendations for Informal Home Care: A Mixed Methods Study.Research in nursing & health · 2026Article
- Observation and Prevention of Caregiver-Related Medication Errors in Community Pharmacies: A Cross-Sectional Study Across Urban, Town, and Rural Settings.Pharmaceuticals (Basel, Switzerland) · 2026Article
- Improving Home Care Safety Among Informal Caregivers Through Immersive Digital Simulation: Secondary Analysis of 3 Coordinated Intervention Studies.Journal of medical Internet research · 2026Observational
- Primary and secondary patient participation - a qualitative study of healthcare professionals' perceptions and experiences.BMC health services research · 2026Article
- A Scoping Review of Technology/Digital Support Tools for Informal Mental Health Carers: Impacts on Well being and Experience.Community mental health journal · 2026Article
- Mapping Existing Informal Home Caregiver Support Guidelines for Palliative Care: A Scoping Review.Rwanda journal of medicine and health sciences · 2026Review
- Training and support for dementia caregivers in the Middle East and North Africa region: a scoping review.Frontiers in public health · 2026Article
- Performance and Perceptions of Health Care Professionals Using an Immersive Virtual Reality Tool for Home Care Training: Observational Feasibility and Acceptability Study.JMIR serious games · 2025Article
- The advocacy effect: a grounded theory study on the inclusion of caregivers or nearest support persons in research to better understand patient outcomes in rheumatoid arthritis.Rheumatology international · 2025Article
- Informal Caregivers in Transitional Hospital-to-Home Care for Older People: Addressing Gaps in Pre-Discharge Collaboration for Enhanced Patient Outcomes.Patient preference and adherence · 2025Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
This research re-examines and broadens the conceptualization of patient safety in home care setting through experts' perspective, and recent changes in the profiles of informal caregivers across Europe and explores their role in the dynamics of the evolving care economy. It assesses their contributions to home care, their impact on care quality, and their essential role in ensuring care recipient safety. A qualitative study using the consensus conference technique involving sixty-one experts from diverse healthcare and academic institutions across multiple European countries who participated in a two-day conference. The discussions focused on highlighting the characteristics of informal caregivers and identifying critical challenges in home care, recognition and reducing human errors in home care. Eligibility for participation required membership in the BetterCare consortium and expertise in patient safety. This study emphasizes the critical role of informal caregivers in Europe, updates their definition, and examines their contribution to care recipient safety in the home care setting. This finding underscores the urgent need for policymakers and healthcare institutions to support caregivers by providing education and resources to prevent errors and enhance care quality, ultimately improving outcomes for care recipients.
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