ArticleMethodsX2025
Contributions and recognition of patient partners in pediatric health research: A rapid scoping review protocol.
Article in MethodsX, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Patient-Oriented Research (POR) is an increasingly common approach that actively engages patients and families in the research process. Despite their significant contributions, patient-partners are rarely credited in academic publications through formal acknowledgment or authorship, and the lack of standardized documentation of their participation makes it difficult to locate patient-engaging studies. There is a limited understanding of how patient-partners are currently being engaged particularly within pediatric health research, and whether their involvement is adequately recognized. Clarifying these processes will strengthen POR in pediatrics to foster more meaningful collaboration and ultimately help improve health outcomes for children and their families. The objective of this rapid scoping review is to: 1) assess the prevalence of acknowledgement and authorship of patient partners in pediatric health research; 2) understand how patient partners contribute through the research process; and 3) assess how patient engagement is identified in publications. We will search MEDLINE (Ovid), Embase (Ovid) and CINAHL (EBSCOhost). In addition, we will search key sources of POR literature. Findings from this scoping review can be used to inform future patient-oriented research and guide the appropriate recognition of patient partner authors.•This rapid scoping review will map how patient partners are recognized for their contributions to pediatric research and how they are engaged throughout the research process•Aim is to provide an evidence base to guide appropriate recognition of patient partner authors.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.