Evidence map›Paper›PMID 40612179›Full record

ArticleSage open pediatrics

The Social Challenges of Stomas Faced by Families of Children With Anorectal Malformations in Uganda.

Felix Oyania, Anthony N Eze, Sarah Ullrich, Meera Kotagal, Doruk E Ozgediz

Abstract read
In one paragraph

Article in Sage open pediatrics. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Felix OyaniaMbarara University of Science and Technology, Uganda.ORCID https://orcid.org/0000-0003-4773-7790
Anthony N EzeDuke University Medical Center, Durham, NC, USA.
Sarah UllrichCincinnati Children's Hospital Medical Center, OH, USA.
Meera KotagalCincinnati Children's Hospital Medical Center, OH, USA.
Doruk E OzgedizUniversity of California, San Francisco, CA, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Aim: To evaluate the anorectal malformation-stoma social challenges experienced by families of children with anorectal malformation in southwestern Uganda. Methods: Using a mixed-methods approach, a descriptive observational quantitative study with structured interview-based data collection was performed. The link between ARMs-stoma-related social challenges faced by families in southwestern Uganda from June 2021 to July 2023 was examined. Results: 157 participants were enrolled, and 74.3% of caregivers reported social challenges. Among those surveyed about the specific nature of these social difficulties, 66.7% reported facing discrimination from the community. 17.9% of patients experienced abandonment by their relatives. 72.1% reported being unable to attend public functions, while 21.4% felt compelled to keep their children indoors. 27.6% reported experiencing social restrictions. Conclusion: Caregivers face social challenges and restrictions due to stomas related to anorectal malformations in their communities. Healthcare providers should tailor care to address the urgent needs associated with these stoma challenges.

Indexed as

anorectal malformationsocial challengessouthwestern Ugandastomas

Identifiers

PMID40612179
PMCPMC12220878

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.