ReviewResearch involvement and engagement2025
The role of representation in participatory settings of health research in Germany: protocol for a scoping review.
Review in Research involvement and engagement, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Public Engagement Strategies in Digital Health Ethics: Protocol for a Scoping Review.JMIR research protocols · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundParticipatory health research (PHR) has gained growing importance as an approach to include the perspectives of patients and communities in health research. While it is widely assumed that PHR contributes to more democratic and needs-based research, the conceptual foundations of how participation and representation are understood often remain vague - particularly in the German research context. This scoping review explores how representation is conceptualized and operationalized in participatory health-related research in Germany.
methodsThe review follows the JBI methodology for scoping reviews and is reported in accordance with the PRISMA-ScR guidelines. A systematic search will be conducted across four databases (PubMed, CINAHL, PsycINFO, Scopus), supplemented by manual searches in the German PartNet archive and reference tracking. Eligible studies must report on empirical, participatory health research conducted in collaboration with a German research institution. Documents will be screened and analyzed using qualitative content analysis in MAXQDA, following both deductive and inductive coding strategies. Representation will be analyzed along two conceptual lines: representation as a responsive relationship and externally ascribed representation. EXPECTED OUTCOMES: The review will map existing understandings and practices of representation in German PHR. Findings will support future methodological and normative debates around participation in health research and provide a foundation for international comparison.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.