ArticleBMC medical ethics2025
Public attitudes toward the research use and storage of residual dried blood spots from newborn screening in China.
Article in BMC medical ethics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
2 citing papers in PubMed.
- Newborn screening and biobanking for preventable genetic disorders in Mongolia: A developing country perspective.Regenerative therapy · 2026Review
- Public attitudes and preferences on organ donation and allocation in china: a cross-sectional study.Scientific reports · 2026Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
purposeTo examine public attitudes in China toward storing and using residual dried blood spots (DBS) from newborn screening (NBS).
methodsA self-designed questionnaire was administered to expectant or current parents using a non-probability sampling approach that combined convenience and snowball sampling. The survey contained questions about demographics, awareness of NBS, willingness to use DBS for research with or without parental permission, willingness to store, and preferred storage duration. Multiple logistic regression was used to identify factors associated with NBS awareness and support for DBS storage.
resultsAmong 1,490 respondents, 42.5% were aware of NBS. Awareness was higher among those with a master’s degree (vs. junior high school, OR = 4.09, 95% CI: 2.07–8.07), income above 200,000 RMB (vs. less than 50,000, OR = 2.52, 95% CI: 1.75–3.63), and two children (vs. none, OR = 2.28, 95% CI: 1.48–3.52). Support for DBS use in research was 77.5% with parental permission and 52.0% without. Parents very willing to use DBS for research were more likely to support storage with permission (aOR = 30.11, 95% CI: 12.19–74.35) and without (aOR = 5.61, 95% CI: 2.09–15.07). Preference for indefinite storage was associated with higher support for storage than preference for a set period (aOR = 5.11, 95% CI: 3.43–7.63).
conclusionIn our study, less than half were aware of NBS, yet most supported DBS use for research with consent. NBS awareness, positive research attitudes, and preference for long-term storage were linked to greater willingness to store DBS. Interventions should prioritize standardized consent procedures, prenatal education, and flexible storage options that accommodate diverse preferences.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.