ArticlePalliative care and social practice2025
End-of-life dignity in Home Hospice: Insights from staff members' narratives.
Article in Palliative care and social practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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Who cites it
2 citing papers in PubMed.
- Reconceptualising Dignity-Centred Care for Hospitalised Older Adults: A Discursive Theoretical Analysis Using the Levine's Conservation Model.Journal of advanced nursing · 2026Review
- Hospice Care's Influence on Pain, Sleep, Anxiety, and Depression: A Focus on Elderly Survivors of Cancer Chemotherapy.Actas espanolas de psiquiatria · 2026Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Dignity is a cornerstone of end-of-life (EoL) care, particularly in Home Hospice (HH) settings, where most patients wish to spend their final days. Despite HH staff's crucial role in preserving EoL dignity and their unique challenges, their views of EoL dignity remain underexplored. Moreover, the limited research draws on declarative descriptions, failing to capture the dynamic nature of EoL dignity as embedded in daily practice. Objectives: To address these gaps, we aimed to identify EoL dignity values and strategies embedded in HH staff's narratives on (in)dignity in their daily practice, that is, Design: Qualitative research using narrative methodology. Methods: Drawing on the narrative research paradigm, 17 multidisciplinary HH staff members recounted cases of dignity or indignity in HH. An inductive, holistic content analysis of 32 narratives identified 48 endpoints illustrating (in)dignity incidents. These endpoints were analyzed to determine dignity values and the strategies used to uphold them. Finally, the endpoints were categorized by dignity values, strategies, and relations-who provided (in)dignity to whom. Results: The narratives presented HH staff as primary dignity providers, often identifying family members as sources of dignity violations. Dignity was framed around two core values, each upheld by three strategies. Conclusion: HH care presents unique challenges in preserving EoL dignity but also offers opportunities for dignity-centered care. Respecting patients' and families' autonomy and individuality through targeted strategies can enhance dignified care. These insights underscore the need to embed dignity-preserving strategies into HH protocols and promote reflective training to heighten staff awareness of dignity violations while reinforcing their strengths in upholding patient and family dignity.
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