Evidence map›Paper›PMID 40604934›Full record

ArticleBMC palliative care2025

What are the greatest opportunities for innovation to improve access to and quality of palliative care services to children? A qualitative interview study.

K Grailey, J Roland, M Lambert, G Fontana, L Dale-Harris, I Williams, A Shaw, A L Neves, J Downing

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC palliative care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

K GraileyCentre for Health Policy, Institute of Global Health Innovation, Imperial College London, Room1034 10th Floor QEQM Building, St Mary's Campus, Paddington, London, W2 1NY, UK. k.grailey18@imperial.ac.uk.
J RolandCentre for Health Policy, Institute of Global Health Innovation, Imperial College London, Room1034 10th Floor QEQM Building, St Mary's Campus, Paddington, London, W2 1NY, UK.
M LambertCentre for Health Policy, Institute of Global Health Innovation, Imperial College London, Room1034 10th Floor QEQM Building, St Mary's Campus, Paddington, London, W2 1NY, UK.
G FontanaCentre for Health Policy, Institute of Global Health Innovation, Imperial College London, Room1034 10th Floor QEQM Building, St Mary's Campus, Paddington, London, W2 1NY, UK.
L Dale-HarrisGlobal Treehouse Foundation, London, UK.
I WilliamsHelix Centre, Institute of Global Health Innovation, Imperial College London, London, UK.
A ShawCentre for Health Policy, Institute of Global Health Innovation, Imperial College London, Room1034 10th Floor QEQM Building, St Mary's Campus, Paddington, London, W2 1NY, UK.
A L NevesDepartment of Primary Care and Public Health, Imperial College London, London, UK.
J DowningInternational Children's Palliative Care Network, Bristol, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundInnovation is required within children's palliative care (CPC) to improve access to and quality of care. Existing research demonstrates a lack of access to CPC worldwide. This study aimed to explore the current opportunities for innovation within CPC from the provider's perspective.

methodsGlobal leaders in CPC were purposively sampled and invited to partake in a qualitative semi-structured interview. Data were thematically analysed using an inductive approach.

resultsFifty-one CPC leaders from 27 countries were interviewed, encompassing clinical, managerial and patient advocacy roles. A thematic framework housing nine key themes was created, reflecting what innovation means in the context of CPC and the future of innovation. Key findings included opportunities to leverage new technologies within the sector. The importance of a clear vision and user-centred design were seen as crucial when innovating in CPC.

conclusionsThis study provides novel insights into opportunities for innovation in CPC, creating a thematic framework that brings together key themes and may help guide future innovation. We also highlight essential areas for innovation such as the use of technology. In the context of existing guidance for the delivery of CPC, leaders and policy makers can use the insights from this work to innovate and improve quality and access to CPC worldwide.

Indexed as

Health Services AccessibilityPalliative CarePediatricsQuality of Health CareChildFemaleHumansInterviews as TopicMaleQualitative ResearchQuality ImprovementChild healthChildren’s palliative careGlobal healthHuman centred designInnovationPaediatric palliative carePerson centred careQualitative research

Identifiers

PMID40604934
PMCPMC12220075

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.