Evidence map›Paper›PMID 40601019›Full record

ArticleHernia : the journal of hernias and abdominal wall surgery2025

A critical COSMIN-informed scoping review of complex abdominal wall hernia quality of life tools: making a case for patient-driven tool development.

Catherine Oxley, Olivia Smith, Asim Abbas, Mark Mierzwinski, Christine Davey, Praminthra Chitsabesan, Srinivas Chintapatla

Abstract readScoping Review
In one paragraph

Article in Hernia : the journal of hernias and abdominal wall surgery, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Patient narratives in an online hernia peer-support community: a qualitative netnographic analysis.Hernia : the journal of hernias and abdominal wall surgery · 2026
    Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Catherine OxleyYork Abdominal Wall Unit, York & Scarborough Teaching Hospitals NHS Foundation, Trust, Wigginton Road, York, YO31 8HE, UK.ORCID 0009-0009-2250-8423
Olivia SmithYork Abdominal Wall Unit, York & Scarborough Teaching Hospitals NHS Foundation, Trust, Wigginton Road, York, YO31 8HE, UK.ORCID 0000-0001-6687-151X
Asim AbbasYork Abdominal Wall Unit, York & Scarborough Teaching Hospitals NHS Foundation, Trust, Wigginton Road, York, YO31 8HE, UK.ORCID 0009-0006-8760-8415
Mark MierzwinskiSchool of Science, Technology and Health, York St. John University, York, UK.
Christine DaveyFormerly of Research and Development, York Teaching Hospital, York, UK.
Praminthra ChitsabesanYork Abdominal Wall Unit, York & Scarborough Teaching Hospitals NHS Foundation, Trust, Wigginton Road, York, YO31 8HE, UK.ORCID 0000-0003-4614-9866
Srinivas ChintapatlaYork Abdominal Wall Unit, York & Scarborough Teaching Hospitals NHS Foundation, Trust, Wigginton Road, York, YO31 8HE, UK. srinivas.chintapatla@nhs.net.ORCID 0000-0001-8326-2847

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundHealth-Related Quality of Life (HRQoL) is increasingly recognized as a key outcome measure in Complex Abdominal Wall Hernia (CAWH) surgery. However, selecting an appropriate HRQoL tool is challenging due to the variety of available instruments and their variable psychometric properties.

aimThis scoping review systematically reviews and evaluates the six CAWH-specific HRQoL tools using the Consensus-based Standards for the Selection of Measurement Instruments (COSMIN) framework. The aim of this scoping review was to assess the clinical suitability and developmental robustness of CAWH-specific HRQoL instruments. This review does not assess post-operative HRQoL outcomes, but rather evaluates the design, content, and methodological quality of CAWH-specific tools themselves using the COSMIN framework.

methodsA scoping review was conducted in accordance with PRISMA-ScR and informed by COSMIN and Joanna Briggs Institute (JBI) scoping methodology. Four databases (MEDLINE, EMBASE, Cochrane CENTRAL, ClinicalTrials.gov) were searched (March 2024) to identify studies that used or evaluated CAWH-specific HRQoL tools. Tools were assessed across key COSMIN domains: conceptual framework, psychometric properties, respondent burden, and patient involvement in development.

resultsSix CAWH-specific HRQoL instruments were identified: CCS, HerQLes, EuraHS-QoL, AAS/mAAS, AHQ, and HERQL. While these tools demonstrated utility, none fully integrated patient perspectives from initial domain development, and all exhibited gaps in content and structural validity. Comparative psychometric data across tools were limited, further complicating selection.

conclusionDespite growing interest in measuring HRQoL in CAWH surgery, existing tools show important developmental limitations. While these tools demonstrate utility, none fully integrate patient perspectives throughout their development, and all exhibit gaps in content and structural validity. Additionally, comparative psychometric data remain limited, further complicating tool selection. Given these limitations, there is a clear need for further development-either by refining existing tools or creating a new, patient-informed HRQoL instrument that adheres to robust psychometric standards.

Indexed as

Hernia, AbdominalHerniorrhaphyQuality of LifeHumansPsychometricsSurveys and QuestionnairesComplex Abdominal Wall HerniaConsensus-based Standards for selection of Measurement INstrumentsHealth-Related Quality of Life

Identifiers

PMID40601019
PMCPMC12222306

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.