Evidence map›Paper›PMID 40597765›Full record

ArticleBMC nephrology2025

Identifying and integrating consumer-prioritised topics and outcomes in clinical practice guidelines on managing kidney stones.

David J Tunnicliffe, Ieuan Wickham, Allison Jauré, Brydee Johnston, Andrew J Mallett, Adam Mullan, Lyn Lloyd, Nicole Scholes-Roberston, Hicham Cheikh Hassan, Matthew Jose and 1 more

Erratum issuedAbstract read
In one paragraph

Article in BMC nephrology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

11 authors.

David J TunnicliffeSydney School of Public Health, The University of Sydney, Sydney, NSW, Australia. david.tunnicliffe@sydney.edu.au.
Ieuan WickhamCentre for Kidney Research, The Children's Hospital at Westmead, Westmead, NSW, 2145, Australia.
Allison JauréSydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.
Brydee JohnstonSydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.
Andrew J MallettDepartment of Renal Medicine, Townsville University Hospital, Douglas, QLD, Australia.
Adam MullanNorthland Renal Services, Te Tai Tokerau, Northland, New Zealand.
Lyn LloydNutrition and Dietitics, Auckland Health, Auckland, New Zealand.
Nicole Scholes-RoberstonSydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.
Hicham Cheikh HassanGraduate School of Medicine, University of Wollongong, Wollongong, NSW, Australia.
Matthew JoseSchool of Medicine, University of Tasmania, Hobart, TAS, Australia.
Caring for Australian and New ZealandeRs with Kidney Impairment (CARI) Guidelines Steering Committee

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimThe prevention and management of recurrent kidney stones can be challenging and requires patients to modify their diet and daily rountines that impact their quality of life. Our study aims to describe the process of integrating consumer-prioritised topics and outcomes in guidelines on kidney stones to ensure patient relevance.

methodsTwo workshops were convened in Aotearoa New Zealand with people with kidney stones invited to identify topics and outcomes for inclusion in the guidelines. Flipcharts and transcripts were analysed thematically to identify the reasons for participants' choices.

resultsThe topics identified by the twenty-eight participants included education on nutrition, better diagnosis, and individualised nutritional and pharmacological management. Pain, equity of access, anxiety about recurrence, and life participation were identified as important outcomes to be included. Four themes (and subthemes) underpinning priorities were: unresolvable debilitating pain (complexity of exctruciating acute episodic pain, inadequacy of pain relief medication, frustrated by stigma associated with opioids), dissatisfied at delayed access to care (prolonged difficulties in diagnosis, struggling to obtain individualised care), inadequate knowledge to enable self-management (insufficient information on kidney stones, conflicting nutrition advice, cultural deficit), and limiting life participation (restricting life choices, psychological burden of kidney stones).

conclusionsParticipants identified topics that would support symptom management to improve quality of life and reduce the burden on families. Guidelines should provide essential, consistent and clear guidance, particularly on nutrition, to support self-management. Incoporating consumer priorities in guidelines can help to support decision-making and patient-centred care in kidney stones.

Indexed as

Kidney CalculiPractice Guidelines as TopicAdultFemaleHumansMaleMiddle AgedNew ZealandPatient Education as TopicQuality of LifeClinical practice guidelinesConsumer involvementKidney stonesNephrolithiasisNutritionPatient-centred care

Identifiers

PMID40597765
PMCPMC12211754

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.