Evidence map›Paper›PMID 40588327›Full record

ArticleBMJ supportive & palliative care2026

Healthcare for adults with long-term neurological conditions: European Academy of Neurology Members Survey.

Katarina Rukavina, Alessandra Solari, Marianne de Visser, Ludo Vanopdenbosch, Magdalena Krbot Skoric, Maria Lolich, Lucia Pavlakova, David Oliver, Simone Veronese

Abstract read
In one paragraph

Article in BMJ supportive & palliative care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Katarina RukavinaMovement Disorders Hospital Beelitz, Beelitz-Heilstätten, Germany.ORCID http://orcid.org/0000-0002-8744-5058
Alessandra SolariUnit of Neuroepidemiology, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy.ORCID http://orcid.org/0000-0001-9930-7579
Marianne de VisserDepartment of Neurology, Amsterdam Neuroscience, Amsterdam University Medical Centre, Location Academic Medical Centre, University of Amsterdam, Amsterdam, Netherlands m.devisser@amsterdamumc.nl.ORCID http://orcid.org/0000-0002-5591-7452
Ludo VanopdenboschDepartment of Neurology, AZ Sint-Jan Brugge AV, Bruges, Flanders, Belgium.ORCID http://orcid.org/0000-0001-8858-8096
Magdalena Krbot SkoricDepartment of Neurology, University Hospital Center Zagreb, Zagreb, Croatia.ORCID http://orcid.org/0000-0002-1087-3732
Maria LolichEuropean Academy of Neurology, Vienna, Austria.
Lucia PavlakovaEuropean Academy of Neurology, Vienna, Austria.
David Oliver *Tizard Centre, University of Kent, Canterbury, UK.ORCID http://orcid.org/0000-0001-9302-3225
Simone Veronese *Fondazione FARO ETS, Turin, Italy.ORCID http://orcid.org/0000-0002-9555-7252

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe number of people living with long-term neurological conditions (PwLTNC) in Europe is on the rise and they experience a variety of complex symptoms, often requiring hospital admissions. This survey explored challenges healthcare professionals are encountering when providing care for PwLTNC.

methodsA web-based survey was developed by the European Academy of Neurology (EAN) Scientific Panel on Palliative Care and disseminated by the EAN Scientific Department through the official mailing list, website and newsletter in the period 3 January 2024 to 27 February 2024. The United Nations' geoscheme for Europe was applied and differences between the North/West vs South/East/Greater European regions analysed.

resultsA total of 153 EAN members (50% women, mean age 48 years) were participated. They expressed their dissatisfaction with the availability of long-term healthcare, including palliative care (60%), psychosocial (67%) and spiritual support (60%) offered to PwLTNC, their families and carers, the resources to provide healthcare for PwLTNC in medical emergencies and knowledge of acute medical staff about PwLTNC (45%). Dissatisfaction with the availability of resources needed to provide healthcare for PwLTNC, the psychosocial support offered to PwLTNC and the extent of advance care planning implementation was more frequently reported in South/East/Greater Europe compared with North/West Europe.

conclusionThis survey of the EAN members revealed dissatisfaction with long-term healthcare, including palliative care, offered to PwLTNC, their families and carers and pointed out healthcare disparities between the two European macroregions, with more critical figures in South/East/Greater Europe.

Indexed as

Long-Term CareNervous System DiseasesPalliative CareAdultAgedEuropeFemaleHumansMaleMiddle AgedNeurologySurveys and QuestionnairesAdvance Care PlanningAdvance DirectivesChronic conditionsCommunicationNeurological conditionsPalliative Care

Identifiers

PMID40588327
PMCPMC13151490

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.