ArticleNeuro-oncology advances
Health-related quality of life and psychological distress in patients with brain tumors and their families: A cross-sectional web survey.
Article in Neuro-oncology advances. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
2 citing papers in PubMed.
- Construction and internal assessment of an exploratory risk prediction model for psychological distress in brain tumor patients: a cross-sectional study.BMC cancer · 2026Article
- Effects of a Post-Discharge Care Program for Surgery Patients with Brain Tumor.Healthcare (Basel, Switzerland) · 2025Article
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Authors and funding
4 authors.
Funding
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Abstract
Background: The diagnosis and treatment of brain tumors significantly impact not only patients but also their families. To develop better supportive care, it is essential to understand their quality of life (QOL) in detail. Methods: The Supportive Care for Brain Tumor Patients study group conducted a web survey targeting individuals aged 18 and above. Participants were recruited from a Japanese cohort and included patients and family members who responded to both the EQ-5D-5L (health-related QOL [HRQL]) and K6 (psychological distress) scales. Scores were compared with those of the general population, and multivariable regression analyses were performed. Results: A total of 136 patients and 103 family members were analyzed. Patients' HRQL was lower than that of the general population. Family members' psychological distress was higher than that of the general population. Factors associated with these quality-of-life indicators differed between patients and family members: decreased HRQL in patients was associated with financial hardship, being a homemaker, longer duration since diagnosis, and under treatment/relapse, while psychological distress in family members was associated with financial hardship and longer commuting time for hospital visits. Conclusions: The diagnosis and treatment of brain tumors significantly impact QOL for both patients and their families. In particular, support for the psychological well-being of family members is crucial, with emphasis on the importance of addressing lifestyle and caregiving needs.
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