Evidence map›Paper›PMID 40584229›Full record

ReviewFrontiers in aging2025

Assessment of burden and needs of family caregivers for the elderly, a scoping review.

Elodie Le Toullec, Anne Le Gagne, Emilie Leblong, Alain Somat, Patrice Piette

Abstract readReview
In one paragraph

Review in Frontiers in aging, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Elodie Le ToullecFondation St Hélier, Departement Clinical Research, Lab St Helier, Rennes, France.
Anne Le GagneFondation St Hélier, Departement Clinical Research, Lab St Helier, Rennes, France.
Emilie LeblongFondation St Hélier, Departement Clinical Research, Lab St Helier, Rennes, France.
Alain SomatDepartment Human Sciences, LP3C, Rennes 2 University, Rennes, France.
Patrice PietteFondation St Hélier, Departement Clinical Research, Lab St Helier, Rennes, France.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Family caregivers play a central role in supporting older adults. Their role is complex and challenging. Their assessment is essential for planning support systems. This review aims to catalog the different scales, identify the spectrum of dimensions they cover, and evaluate their psychometric quality, with the aim of reflecting on potential clinical recommendations. Method: A systematic review of MEDLINE, PsycINFO, google scholar and CINAHL databases identified tools for measuring family caregiver engagement. Two reviewers selected relevant studies using predefined criteria. Keywords included "family caregivers," "engagement," "measurement," and "psychometrics." Extracted data was analyzed for reliability, validity, and other psychometric properties. Results: We identified 140 articles, 38 of which were analyzed, utilizing 29 different scales to assess caregiver support across various dimensions such as burden, stress, or needs. Clinimetric assessment using an abbreviated COSMIN checklist revealed significant variability in the reliability and validity of these scales, with only 2 meeting clinical research standards. Notable deficiencies were found in internal consistency, reproducibility, and construct validity. None of the scales cover the entire range of complex dimensions associated with family caregivers. Conclusion: The study underscores the need for improved measurement tools tailored to the complexities of caregiver engagement. Future work should focus on developing more refined scales that better capture the diverse needs of family caregivers to enhance support.

Indexed as

assessmentburdenchronic stresselderlyfamily caregiversneedspsychometric propertieswellbeing

Identifiers

PMID40584229
PMCPMC12202512

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.