Evidence map›Paper›PMID 40583599›Full record

ArticleCancer reports (Hoboken, N.J.)2025

Toward the Patient Participation Pathway: A Mixed Methods Study of Patients With Cancer and Other Chronic Diseases.

Paloma Casado Durández, Eleuterio A Sánchez-Romero, Alicia Negrón Fraga, Concepción Rey Benayas, Claudia Ruiz-Huerta García de Viedma, Davinia Medina Ferrer, Ildefonso González Solana, Maria Caballero Nahúm, Mercedes Vinuesa Sebastián, Rosa María de la Salazar Guerra and 3 more

Abstract read
In one paragraph

Article in Cancer reports (Hoboken, N.J.), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Paloma Casado DurándezMedical Specialist in Clinical Analysis, Hospital Universitario del Sureste, Madrid, Spain.ORCID 0009-0008-5452-8819
Eleuterio A Sánchez-RomeroResearch Group in Nursing and Health Care, Puerta de Hierro Health Research Institute-Segovia de Arana (IDIPHISA), Majadahonda, Spain.ORCID 0000-0003-0254-6501
Alicia Negrón FragaRamón y Cajal University Hospital, Madrid, Spain.ORCID 0000-0001-5869-9430
Concepción Rey BenayasHospital Clínico San Carlos, Madrid, Spain.ORCID 0000-0002-2099-8512
Claudia Ruiz-Huerta García de ViedmaHospital Universitario Cruz Roja San José y Santa Adela, Madrid, Spain.ORCID 0000-0002-4698-3554
Davinia Medina FerrerUniversity Hospital of Torrevieja, Alicante, Spain.ORCID 0009-0009-5824-4431
Ildefonso González SolanaHospital Universitario Cruz Roja San José y Santa Adela, Madrid, Spain.ORCID 0009-0000-3034-5884
Maria Caballero NahúmGuadarrama Hospital, Madrid, Spain.ORCID 0009-0008-8802-6745
Mercedes Vinuesa SebastiánUniversity Hospital of La Princesa, Madrid, Spain.ORCID 0000-0003-1786-270X
Rosa María de la Salazar GuerraGuadarrama Hospital, Madrid, Spain.ORCID 0000-0002-2915-907X
Nina Cadeau-ComteInterdisciplinary Research Group on Musculoskeletal Disorders, Madrid, Spain.ORCID 0009-0008-4379-1830
Laura Jiménez-OrtegaDepartment of Psychobiology, Complutense University of Madrid, Madrid, Spain.ORCID 0000-0001-8002-5563
Juan Nicolás Cuenca-ZaldívarResearch Group in Nursing and Health Care, Puerta de Hierro Health Research Institute-Segovia de Arana (IDIPHISA), Majadahonda, Spain.ORCID 0000-0002-6787-3944

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionChronic diseases such as breast cancer, colon cancer, chronic obstructive pulmonary disease (COPD), stroke, diabetes, depression, and myocardial infarction remain leading causes of death worldwide, contributing significantly to premature mortality. Understanding psychosocial impact is essential for comprehensive care. This study aimed to explore how patients with different chronic disease profiles experience participation during the chronic phase, using a mixed-methods approach. MATERIALS AND

methodsA convergent parallel mixed-methods design was used to integrate qualitative data from focus group discussions and quantitative data from physical performance tests. A total of 117 patients were recruited through clinical referrals and patient associations, using purposive and snowball sampling. Thematic analysis was performed collaboratively to ensure consistency. Statistical analysis (R v4.1.3) examined the coding and sentiment differences across disease profiles.

resultsThe sample included 117 patients (mean age = 58.66 years; majority were female). Significant differences in qualitative coding were found between pathologies (p < 0.001), particularly regarding quality of life and emotional experience in COPD and stroke patients compared to others (p < 0.05). Topic modeling identified seven relevant topics, and two main coding clusters emerged: one focused on pain and basic activities, and the other on environment and advanced activities. Positive emotions were predominant (p < 0.001). The thematic analysis revealed three main themes: quality of life, emotional experience, and empowerment.

conclusionPatients with different chronic conditions experienced disease and unique participation. Patients with breast cancer prioritized pain and daily function, while patients with COPD focused on autonomy in self-management. These findings support the need for individualized disease-specific approaches to promote meaningful patient participation.

Indexed as

NeoplasmsPatient ParticipationQuality of LifeAdultAgedChronic DiseaseFemaleFocus GroupsHumansMaleMiddle AgedQualitative Researchchronic diseaseempowermentpatient participation

Identifiers

PMID40583599
PMCPMC12207092

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.